Axonal damage in SPG4 studied
Imaging shows impairment related to severity
HSP Research Foundation
Welcome to the HSP Research Foundation – created in 2005 to find an effective treatment for Hereditary Spastic Paraplegia (HSP) – a progressive, inherited, degenerative disease affecting mainly the legs, causing spasticity, muscle weakness and severely impairing walking.
The HSP Research Foundation is an incorporated, registered Australian charity that facilitates and funds research to find an effective treatment. The Foundation is also the community hub for people with HSP in Australia, creating awareness and providing information, education and support. Read more »
Summer Edition 2021
Autumn edition to be published early March 2022
Research highlights »
Therapeutic strategies for SPG4
Multiple pathways of disease and remedy defined
Potential biomarker identified for SPG5
Spinal cord area measurements definitive
HSP misdiagnosed as CP in children
Advanced genetic testing vital
3 new HSP gene candidates
KPNA3, VRK1 and ABHD16A proposed
Brain imaging studies of AP-4 HSP group
Improving early diagnosis & prognosis
Ancient herbal remedy for neurological disorders
Potential for treating SPG20
New HSP genotypes and phenotypes
Research from South Korea, Finland, China, Spain, Turkey, Bahrain, Japan, Spain, Germany, Poland, Australia, Singapore, France, Taiwan, UK, Italy, India
Living with HSPmanagement & treatment news »
Information about falls & falling
How to minimize the risk
Paralympian with HSP
Gold medal in life as well as in the pool
Carer Gateway
Making life easier for carers
‘Uplift Project’ for 16-25 yr olds with HSP
Take the survey to guide research
Medicinal Cannabis & pain relief
Insufficient safety & risk/benefit data
UK Annual HSP Survey 2021
All with HSP invited to take the survey
Gait metrics provide valuable indicator
Correlate with fear of falling, quality of life and mobility
Foundation News »
Research program update December 2021
Research team members presenting
3 commentsInternational Day of People with Disability
Friday, 3 December, 2021
Accelerating gene therapies for rare diseases
$76 million over 5 years to be invested
Rescuing drug castoffs
Finding a development path for promising drugs
Some aspects of Foundation support role
Demand steadily grown over time
NDIS update December 2021
Fresh concerns about the scheme
