SPG15 HSP disease mechanism defined
Drug candidates for treatment identified
Welcome to the HSP Research Foundation – created in 2005 to find an effective treatment for the Hereditary Spastic Paraplegias (HSPs) – a group of progressive, inherited, degenerative diseases affecting mainly the legs, causing spasticity, muscle weakness and severely impairing walking.
The HSP Research Foundation is an incorporated, registered Australian charity that facilitates and funds research to find effective treatments and cures. The Foundation is also the community hub for people with HSP in Australia, creating awareness and providing information, education and support. Read more »
Summer Edition 2022
Autumn edition to be published early March 2023
Drug candidates for treatment identified
Disruption to another gene SARS2 identified
Particular features of gait identified
Effective for DNM2 related diseases including SPG
Comprehensive characterisation established
Relevant to disease mechanism
Machine learning the key
Advantages and challenges
Lipid processing, ER & mitochondria involved
Research from USA, Germany, Brazil, UK, China, Taiwan, Iran, Azerbaijan, Pakistan
What you wished you knew
6 commentsA ‘view anytime’ webinar
A community member’s story
And sticking with it to reap the benefits
All with HSP invited to take the survey
Option to antibiotic treatment
What supports are available
Flexible configurations for standing or sitting
Addressing the challenge globally
Disabilty advocate Graeme Innes on the board
Concerns Robo-debt coming to NDIS
SPG4 and SPG56 research
Held in Victoria, Qld, NSW & ACT
Committee elections
Heartbreaking evidence heard
Manufacturing collaboration announced
Newsletter of the HSP Support Group (UK)