HSP Research Foundation
Welcome to the HSP Research Foundation – created in 2005 to find an effective treatment for Hereditary Spastic Paraplegia (HSP) – an inherited, degenerative disease affecting mainly the legs, causing spasticity, muscle weakness and severely impairing walking.
The HSP Research Foundation is an incorporated, registered Australian charity that facilitates and funds research to find an effective treatment. The Foundation is also the community hub for HSPers in Australia, creating awareness and providing information, education and support. Read More »
Spring Edition 2020
Summer edition to be published early December 2020
New findings about SPG7 and SPG4
Limitations of genetic testing technology
Challenges in diagnosis experienced
Structure and function of mitochondria affected
New mutation in SPG7 implicated
Relevance for HSP clinical trials
Research from China, Japan, Russia, USA, Turkey, Italy, Germany and Taiwan
Talking about it is a good start
Build arm and leg strength, core stability and fitness
One HSPer’s experience
Regular sunshine or supplements needed
Helping recently diagnosed marathon runner
Treated with drug therapy
Annual conferences and newsletters
Trying times for many
Battled back after injury
Participant Service Charter introduced
Decisions, decisions? Take the survey!
Supporting carers’ education
Invitation to participate in research
Foundation Research Team
Fundraising for HSP Research
Biomarker studies and advanced planning for clinical trials are the current focus of the HSP Research Program. The aim is to find out if the drug treatment effective with HSP stem cells in the lab is effective with HSPers themselves.
There are technical, medical, ethical, regulatory, logistical, legal, financial and organisational challenges to address and take action on. The Foundation is fully committed to pushing ahead despite restrictions and limitations imposed by the global coronavirus pandemic.
Consistent funding support helps attract outside funding. We need to reach $120,000 again in 2020 and we need your support now more than ever.
An effective treatment for HSP is now within reach!