HSP Research Foundation
Welcome to the HSP Research Foundation – created in 2005 to find an effective treatment for Hereditary Spastic Paraplegia (HSP) – an inherited, degenerative disease affecting mainly the legs, causing spasticity, muscle weakness and severely impairing walking.
The HSP Research Foundation is an incorporated, registered Australian charity that facilitates and funds research to find an effective treatment. The Foundation is also the community hub for HSPers in Australia, creating awareness and providing information, education and support. Read More »
Summer Edition 2020
Autumn edition to be published early March 2021
Drug treatment to correct impairment identified
Shedding light on treatment targets
Covers SPG47, SPG50, SPG51 and SPG52
Mice with SPG31 have functions restored with treatment
Division (fission) problems in mitochondrial network
Findings of electrophysiological studies
And what you can do about it
HSPers everywhere invited
Challenges and needs of the sibling role
World first device in Sydney
Brief instruction found to help
Linked to limited HSP knowledge
Q&A session at Foundation AGM
Thursday, 3 December
Negative findings in Covid response report
New assessment process concerns
$112 million committed over 4 years
Foundation Research Team
Fundraising for HSP Research
Biomarker studies and advanced planning for clinical trials are the current focus of the HSP Research Program. The aim is to find out if the drug treatment effective with HSP stem cells in the lab is effective with HSPers themselves.
There are technical, medical, ethical, regulatory, logistical, legal, financial and organisational challenges to address and take action on. The Foundation is fully committed to pushing ahead despite restrictions and limitations imposed by the global coronavirus pandemic.
Consistent funding support helps attract outside funding. We need to reach $120,000 again in 2020 and we need your support now more than ever.
An effective treatment for HSP is now within reach!