Gait changes measure HSP progression
Evidence established in large study
Welcome to the HSP Research Foundation – created in 2005 to find an effective treatment for the Hereditary Spastic Paraplegias (HSPs) – a group of progressive, inherited, degenerative diseases affecting mainly the legs, causing spasticity, muscle weakness and severely impairing walking.
The HSP Research Foundation is an incorporated, registered Australian charity that facilitates and funds research to find effective treatments and cures. The Foundation is also the community hub for people with HSP in Australia, creating awareness and providing information, education and support. Read more »
Autumn Edition 2023
Winter edition to be published early June 2023
Evidence established in large study
Speech therapy evaluation recommended
3 commentsFound to cause complex HSP in 3 children
Metabolic therapies may have potential
Potential for testing therapies
Research from China, Mali, India, Taiwan, Russia, Saudi Arabia
Addition to HSP gene testing panels recommended
Add to your routine
1 commentHelpful infographics developed
Planning a conversation can help
1 commentThe SPRS alone showed clinical progression
Evidence for improvement lacking
Outstanding scientist & dear friend of the HSP community
1 commentCelebrate Rare Disease Day to raise public awareness
Fundraiser for HSP research
1 commentAdelaide, Hobart, Melbourne
Over $1 million goes to 7 projects