HSP Research Foundation
Welcome to the HSP Research Foundation – created in 2005 to find an effective treatment for Hereditary Spastic Paraplegia (HSP) – an inherited, degenerative disease affecting mainly the legs, causing spasticity, muscle weakness and severely impairing walking.
The HSP Research Foundation is an incorporated, registered Australian charity that facilitates and funds research to find an effective treatment. The Foundation is also the community hub for HSPers in Australia, creating awareness and providing information, education and support. Read More »
Autumn Edition 2021
Winter edition to be published early June 2021
New HSP genotypes and phenotypes
Research from China, Australia, Greece, the UK, Republic of Moldova, France, Cyprus, Italy, the USA, Japan, Sweden, Algeria, Portugal, Turkey, Belgium and India
Your Say »
This space is for you to have your say. Email us
Foundation Research Team
Here are the researchers working on the HSP Research Program facilitated and funded by the Foundation
Fundraising for HSP Research
Securing the supply of drug treatments needed for the Phase 1 clinical trial is the current focus of the HSP Research Program. The aim of the clinical trials is to find an effective treatment for HSP.
There are technical, medical, ethical, regulatory, logistical, legal, financial and organisational challenges to address and take action on. The Foundation is fully committed to pushing ahead despite restrictions and limitations imposed by the global coronavirus pandemic.
Consistent funding support helps attract outside funding. The effort to get close to the target in 2020 is admirable in the circumstances – Thanks to those who gave! We need to reach $120,000 again in 2021 and need everyone’s support more than ever.
An effective treatment for HSP is now within reach!
