HSP Research Foundation
Welcome to the HSP Research Foundation – created in 2005 to find an effective treatment for Hereditary Spastic Paraplegia (HSP) – an inherited, degenerative disease affecting mainly the legs, causing spasticity, muscle weakness and severely impairing walking.
The HSP Research Foundation is an incorporated, registered Australian charity that facilitates and funds research to find an effective treatment. The Foundation is also the community hub for HSPers in Australia, creating awareness and providing information, education and support. Read More »
Winter Edition 2020
Spring edition to be published early September 2020
Consequence of higher sensitivity to oxidative stress
Fundamental processes and potential drug targets1 comment
Applies to HSP types 47, 50, 51 and 52
Three new mutations identified
Amino acid deficiency found
Initial impact is early in neurodevelopment
Research from Poland, Sudan, Spain, Iran, Korea, China, Czech Republic, Taiwan, Turkey, Mexico and Italy
Cognitive and social/emotional impairment found
Data on wellbeing, mobility, medication
HSPers share their experiences
Improvement in spasticity & quality of life
Large survey conducted in the Netherlands
More flexibility with using funds
HSP families invited to participate
Challenges faced with the bushfires
Hawthorn AFL Club program
3 first-class proposals receive funding
Foundation Research Team
Fundraising for HSP Research
Pre-clinical investigations leading into clinical trials are the current focus of the HSP Research Program. The aim is to find out if the drug treatment effective with HSP stem cells in the lab is effective with HSPers themselves.
There are technical, medical, ethical, regulatory, logistical, legal, financial and organisational challenges to address and take action on. Biomarker studies to find a measure for HSP are underway and drug dose range finding studies are now completed.
Consistent funding support helps attract outside funding. We need to reach $120,000 again in 2020.
An effective treatment for HSP is now within reach!