HSP Research Foundation
Welcome to the HSP Research Foundation – created in 2005 to find an effective treatment for Hereditary Spastic Paraplegia (HSP) – an inherited, degenerative disease affecting mainly the legs, causing spasticity, muscle weakness and severely impairing walking.
The HSP Research Foundation is an incorporated, registered Australian charity that facilitates and funds research to find an effective treatment. The Foundation is also the community hub for HSPers in Australia, creating awareness and providing information, education and support. Read More »
Autumn Edition 2020
Winter edition to be published early June 2020
Missense mutations also related to earlier onset
Promising results in mouse studies
Mechanism unrelated to microtubule-severing ability
Flavonoid treatment restores impaired function
Revealing big picture overview
Research from Russia, China, Japan, Poland, Italy, Canada, Czech Republic, Spain, the UK and Iran
Retinal nerve fibre thickness studied
Successful formula reported in a recent study
Wins first world title in wheelchair motocross
HSPer working to increase accessability
Patience, ambition and pragmatism
New data sharing tool VariantMatcher
Australian of the Year 2017
Head of the HSP Research Program, Prof Alan Mackay-Sim was named Australian of the Year for 2017 by the Prime Minister in an awards ceremony at Parliament House in Canberra in late January. Read More »
Fundraising for HSP Research
Pre-clinical investigations leading into clinical trials are the current focus of the HSP Research Program. The aim is to find out if the drug treatment effective with HSP stem cells is effective with HSPers.
There are technical, medical, ethical, regulatory, logistical, legal, financial and organisational challenges to address and implement. Biomarker studies to find a measure for HSP are underway as is a drug dose modelling study. Consistent funding support helps attract outside funding. We need to reach $120,000 again in 2020.
An effective treatment for HSP is now within reach!