2017 Survey of HSPers now available

Focus on jobs, walking, well-being and pain


Adam Lawrence

The regular annual survey of HSPers that is put together by UK HSPer, Adam Lawrence, who is now also the Chairman of the UK HSP Support Group, is now available to be taken.


2017 Survey Now Open

Adam writes “After the success of previous surveys, and feedback from readers and others, I’m continuing the pattern with another survey this year. The focus for this survey is understanding:


     * How HSP affects peoples jobs/occupations


     * Pain


     * Factors that affect walking


     * Wellbeing


There are a range of questions for each topic. I have designed the questions for occupation and walking factors. Pain is assessed using the Short Form McGill Pain Questionnaire 2, with extra questions on where the pain is felt and how you treat it. Wellbeing is assessed using the Warwick-Edinburgh Mental Well-being Scale (WEMWBS) for assessing positive mental health and the Patient Health Questionnaire (PHQ2) used as a screening tool for depression.


Following previous years, the results will be collected until early 2018, then analysing these in time to publish the results on Rare Disease Day, 28th Feb 2018.


As before, all questions are optional (apart from your name and country). If you have taken part in any of these surveys before, please use the same name to allow tracking.


Already there have been over 100 responses. Quick highlights:

  • 80% consider themselves disabled.
  • 80% get pain from HSP.
  • 80% cannot walk as far as they want.
  • 40% are in work, 30% do not work. (other 30% retired/student/carer).
  • People are spending ~25mins to complete the survey


Thanks to everyone!


SOURCE: http://hspjourney.blogspot.com/2017/09/2017-survey-now-open.html   Tuesday, 12 September 2017


Adam Lawrence, Bristol UK

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