Posted - December 2019 in Living with HSP - Management & Treatment News
Focus on medication, exercise
The annual survey of HSPers by Adam Lawrence, Chairman of the UK HSP Support Group and an HSPer himself, is now available.
The focus for this year:
* ‘lifespace’ tracking
* survey and blog
^ If you do not take any medication, click “next” through until you get to the exercise and relaxation questions.
The analysis of answers will take into account both mobility and wellbeing.
The survey will remain open for completion until the end of December, with results published on Rare Disease Day 2020 – Saturday 29th February.
There are two required questions in the survey – your name and your country. Use your real name or a pseudonym of your choice, just enough to allow tracking of people who may come back and answer any subsequent surveys. E-mail addresses are requested should you wish to be contacted about the results of this survey or participation in future surveys. All other questions are optional.
Your responses are pooled for analysis. Personal information will not be shared with any other person/company. The survey data is backed up using on-line file storage systems.
Complete survey here: http://hspjourney.blogspot.com/2019/10/2019-survey-open.html