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Author: Editor

Dylan Alcott Australian of the Year 2022

His inspiration yielding results

28 February is Rare Disease Day

Show your support

NDIS funding cuts

Tens of thousands affected

Groundbreaking UN Resolution on Rare Diseases

Adopted by all 193 Member States

New Foundation collaboration

Genetic Cures for Kids

US HSP support group

Latest newsletter

Impaired mitochondria cause SPGs 11 & 48

Specific impairments identified

New crossbred SPG4 mouse holds great promise

Aim to use for testing SPG4 therapies

Special imaging yields SPG4 insights

Axonal damage measured

Shortening the “diagnostic odyssey”

Whole genome sequencing the key

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HSP Research Foundation

Welcome to the HSP Research Foundation - created in 2005 to find a cure for Hereditary Spastic Paraplegia - an inherited, degenerative disease affecting mainly the legs, causing muscle weakness, spasticity and severely impairing walking. Read more »

Information on this website and resources to which we have links are general knowledge about HSP. We are not medical professionals, nor do we offer medical advice. Always consult your own medical professionals regarding your particular circumstances.

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The HSP Research Foundation Incorporated ABN 46648875912 is an Income Tax Exempt Charity endorsed by the ATO as a Deductible Gift Recipient organisation.

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