Danish Workshop & USA Synapse

Posted - March 2012 in Living with HSP - Management & Treatment News

The Danish Assoc for Ataxia and HSP

The Danish Assoc for Ataxia and HSP had their annual conference on Nov 5th, 2011. Here are sessions from the Conference titled “Quality of Life”.

 

USA Synapse

The Winter 2012 edition of Synapse, the newsletter of the Spastic Paraplegia Foundation in the USA is now available online. Just click on the newsletter image to download as a PDF file (1.6 MB)

Physiotherapist Liz Wrobleski outlines everything you need to know to safely and effectively get the most out of a stationary bike (page 10).

HSP research updates are on pages 11-12.

Electric scooters are covered in great detail on pages 13–15 in an article by Dr. Malin Dollinger.

Here are details of the SPF’s 2011 Research Grant Awards:
Melissa M. Rolls, Ph.D., Assistant Professor,
Biochemistry and Molecular Biology, Penn State
University, University Park, PA, “Function of spastin
in axon regeneration: a new role for the HSP protein
Spastin”

Xue-Jun Li, Ph.D., Assistant Professor, Health Science
Center, Department of Neuroscience, University of
Connecticut, Farmington CT, “Elucidating the role of
BMP signaling in HSP using patient-specific induced
pluripotent stem cells”

Paola Arlotta, PhD, Assistant Professor of Stem Cell and
Regenerative Biology, Harvard University, “Molecular
mechanisms of corticospinal motor neuron dysfunction
in HSP and PLS”

John K. Fink, M.D., Professor, Department of
Neurology, University of Michigan, Ann Arbor, MI,
“Natural history of primary lateral sclerosis and
hereditary spastic paraplegia: establishing parameters
for clinical trials”

Nichole Hein, Ph.D., Postdoctoral Fellow, Department
of Neurology, University of Michigan, Ann Arbor,
MI, “In vitro models of Primary Lateral Sclerosis and
Hereditary Spastic Paraplegia”

 

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