Posted - November 2013 in HSPRF News
A long way to reach our goal
With the Christmas holiday season and the end of 2013 upon us, we find ourselves not yet halfway to this year’s goal of $75,000, having received just $29,000 so far.
We have over $45,000 to go to hit our target of $75,000 in 2013
… and for that, we will need the support of everyone.
We ask you to give only twice a year, in June and December, and we call on everyone to continue to invest in finding a cure for HSP. You can give any day of the week, and any time of day or night by clicking on the orange GIVE tab at the right-hand end of the menu bar on any page.
More research needed
Planning for 2 new research projects is well advanced… each is designed to provide a required level of validation for the potential drug cures now being tested on nasal stem cells. The first new testing and validation project being planned would create human corticospinal neurons affected by HSP using induced pluripotent stem cells. These neurons would be identical to those found in the brain stem of people with HSP and are the location where any drug would have to do its work to cure HSP. The second project would test the drugs on mice with HSP and assess how well the drugs work at both the cellular level and in reversing HSP symptoms such as impaired walking. These projects are essential to qualifying potential drugs for clinical trials so that a drug cure may one day be generally available to treat HSP.
We are facing challenging times in the quest to continue funding research towards a cure for HSP. Together we can meet that challenge… please give generously to ensure vital research can be undertaken.