Posted - September 2016 in Living with HSP - Management & Treatment News
Not to be taken lightly
This article is by SP Foundation Board Member Jackie Wellman
Just last week I had the second person in my family die from urinary tract infections caused by having HSP and it went systemic. Yes, die from a urinary tract infection that went systemic.
The first was in 2000 and it was my Grandma. She died from a chronic urinary tract infection that went systemic. Last week my 63 year old Uncle John was the second.
This article is to warn you that urinary tract infections are nothing to mess around with.
If you have bladder issues with your HSP or PLS, like urgency, then chances are you have to go all the time because you are not emptying. Our bladders just do not work right; therefore they do not empty completely. Even though you may feel like it is. If you have to urinate within the next hour it is because there is too much in there….because it did not empty completely.
Think of a pond that does not get drained…it gets gross. Unpleasant things start growing in it. Same thing with the bladder…not green algae, but nasty bacteria. Those bacteria can become resistant to antibiotics and then you are in trouble.
I used to get UTIs frequently. The doctor talked me into trying to self-cath morning and night. I have not had an infection since. That was about ten years ago. I now get bladder Botox and self-cath about six times a day. Every day. Yes, I would much rather not do it but the alternative is to die…at least in my family. The bladder Botox is painless also. I feel normal for 6-9 months. It’s worth it in every way to me. Before doing Botox I was visiting the bathroom every fifteen minutes.
I urge you, if you are debating about whether or not to start self-cathing, to bite the bullet and do it. It is painless and easy. Not the most convenient thing but better than the alternative.