HSPer trys Fampradine (Fampyra)
I am Grant Powell from Melbourne. I am trying a new drug Fampyra, which is for people who have MS, to see if it will help my Familial Spastic Paraplegia that I have had for 25 years.
My doctor seems to think I should give a try and so do I. From the news I have read about what it is doing to assist MS people it sounds very interesting.
There is a large cost at the moment – $650 for 56 tablets and you take 2 per day. There is no PBS on the drug so I am going to try it for 28 days and see how it goes. I have only taken it for 9 days so far. Nothing at the moment, but I will let you know how things go.