Posted - February 2017 in Living with HSP - Management & Treatment News
Management without pills
Following on from an article in the Summer 2016 condition of the website on pain management http://www.hspersunite.org.au/severe-pain-and-hsp/ here is a follow-up talking about pain and spasticity management without pills.
Often descriptions of HSP don’t mention pain, but given the HSP gait pattern, influenced by weak and spastic muscles, difficulty with balance, foot misuse and/or inappropriate spinal movement patterns, it doesn’t take too much imagination to appreciate that HSP can cause pain. Doctor prescribed painkillers offer relief for some but not for everyone or in every circumstance, and can be used safely only for relatively short periods.
Here is a webinar produced in October 2016 titled Pain and Spasticity Management Without Pills. It comes from the United Spinal Association. The two presenters are very knowledgeable and at the end of the webinar they offer their email addresses for those who have further questions.
This hour long webinar includes:
6:00 Introduction and Objectives
8:00 Types of chronic pain
11:30 Types of spasticity
13:00 Types of treatment options
15:45 Alternative therapies
18:00 Coping strategies that help with pain
23:15 Cognitive Behavioural Therapy
29:50 PENS (for deeper delivery)
31:30 IDDS (implanted drug delivery systems)
32:55 SCS (Spinal cord Stimulation)
34:30 Pain support groups
37:00 Alternatives (including 39:00 light therapy for increased circulation; 40:00 transcranial direct current stimulation)
42:45 Investigational devices (including whole body vibration for spasticity)
48:40 Considerations for pain/spasticity management
50:45 Additional Resources (this website looks especially helpful) http://www.paintoolkit.org/
This webinar and the included additional resources offer a wealth of information on pain and spasticity management. There may not be one easy answer for getting a handle on your pain but you can learn of options and be much better informed if you’re working with a doctor or pain management specialist. If working independently, this information will help you gain some control of your pain and make some improvements.