Rare Disease Day, 28 February 2014

Posted - February 2014 in HSPRF News

Day of global support for rare diseases

 

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Each year, the rarest day of the year… 28 February… is observed globally as Rare Disease Day. This is the 7th annual Rare Disease Day and it is now supported by both a global organisation as well as an Australian one.

 

Go to these websites to learn more about related events and initiatives and to show your support through the websites and on social media.

One of this year’s initiatives by The Australian Paediatric Surveillance Unit is a two-day educational workshop being held at the Kids Research Institute located in the Children’s Hospital at Westmead in Sydney. The 1st day of the workshop on Friday 14 March is just for medical professionals… here is the program.  The 2nd day of the workshop on Saturday 15 March is for families and is free… here is the Saturday program.

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