Highlights living with a rare disease
28 February 2015 is the official Rare Disease Day worldwide. http://www.rarediseaseday.org/
The website lists initiatives and activities from around the globe to publicise, bring awareness to and advance the interests of everyone affected by a rare disease.
There is also a dedicated Australian website http://www.rarediseasedayaustralia.com.au/ focused on initiatives and events taking place in this country.