The medical and allied health professionals listed below have been submitted by members of the HSP community and offered here as a resource to help people locate neurologists, physiotherapists and others with HSP experience. They are not a recommendation from the Foundation. You will need to assess the suitability of any particular practitioner for yourself.
Neurologists & Rehab Physicians
Rehabilitation Physician – spasticity management, gait management, paediatric rehab.
Victorian Paediatric Rehabilitation Service, Monash Children’s Hospital
246 Clayton Road, Clayton VIC 3168
Ph: 03 8572 3054
Fax: 03 8572 3817
Central Rehabilitation Group
1st Floor, Masada Hospital
26 Balaclava St, St Kilda East VIC 3183
Ph: 03 9038 1503
Fax: 03 9038 1650
“He is absolutely brilliant – he specialises in Neurology, Spinal Cord and Pain Rehabilitation.”
East Malvern VIC 3145
Ph: 03 9500 0172
“ … was onto it immediately and her helping me understand what I had; was extremely sensitively and intelligently handled.”
Neurogeneticist / Paediatric Neurologist
Monash Children’s Specialist Consulting, Monash Children’s Hospital
246 Clayton Road
Clayton, VIC 3168
Ph: 03 8572 3004
Monash Children’s Private Clinic
17 Murray Street
Clayton VIC 3168
Ph: (03) 8572 1222
Fax: (03) 8572 1224
Royal North Shore Hospital
Pacific Hwy, St Leonards NSW 2065
Ph: 02 9926 8481
St Vincents Clinic
438 Victoria Street, Darlinghurst NSW 2010
Ph: 02 8382 6715
” … he is really good … asked about problems I had skateboarding as a kid … also identified that my mother who was with me has HSP”
Sydney Children’s Hospital
High Street, Randwick NSW 2031
referral from specialists only by:
Fax: (02) 9382 1508, or
Mail: Dr Michelle Farrar, Neurology, Secretarial Admin Services, level 4, Sydney Children’s Hospital, High Street, Randwick NSW 2031
131 Wickham Terrace, Brisbane Qld 4000
Ph: 07 3831 1704
St. Andrew’s Place
33 North St, Spring Hill, Brisbane Qld 4000
Ph: 07 3832 0501
Paediatric and Adult Neurologist/Neurogeneticist
Specialist Clinic Subiaco
Unit 8, 420 Roberts Road, Subiaco WA 6008
Ph:(08) 6380 1899
Fax:(08) 9382 4466
Royal Perth Hospital Neurogenetic Unit
Level 8, South Block Royal Perth Hospital
Victoria Square in the CBD, Perth WA 6000
Ph: 08 9224 3353 / 08 9224 2430
Fax: 08 9224 3929
“Initially diagnosed me and has a good understanding of HSP.”
“Phillipa Lamont’s primary focus is the improvement of one’s quality of life. She has an extensive understanding and experience with a broad range of the issues that confront HSPers and is willing to advise and assist on all of the impacts of HSP.”
Southern Neurology & Neurophysiology
32 Kensington Road, Rose Park SA 5067
Ph: (08) 8333 2545
Hampstead Rehabilitation Centre
207-255 Hampstead Rd, Northfield SA 5085
Ph: 08 8222 1625
Royal Adelaide Hospital
University of Adelaide
North Terrace, Adelaide SA 5000
Ph: (08) 8222 5289
Neurologist and Neurophysiologist
Level 2 – 9/3 Sydney Avenue, Barton ACT 2600
Ph: 02 6152 8998
Fax: 02 6169 3198
e: [email protected]
“… quite patient and helpful”.
Physiotherapists & Neurophysiotherapists
Many with HSP can benefit from a well-designed program of stretching, strengthening and exercise for improved cardiovascular fitness, mobility and flexibility, and spasticity reduction. Such a program can be designed, developed and monitored for maximum effectiveness by a neurophysiotherapist or a physiotherapist with neurological and/or rehabilitation training. The starting point is a thorough assessment, possibly some treatment, then the development and implementation of a program customised for the individual.
If you have not already been to a physio, there may be significant benefits from doing so. Here’s how to find one:
The Australian Physiotherapy Association website has a ‘Find a Physio’ tool although listings are incomplete. The search function allows you to sort by Location and Clinical Area – choose ‘Neurology’, as a physiotherapist with a neurology interest is likely to be a good resource in developing a program for people with HSP.
North West Medical Centre
125 Flockton St., Everton Park Queensland 4051
Ph: 3353 4111
Email: [email protected]
“Roger goes out of his way to meet my physical needs and has given me a better quality of life. I would highly recommend him to other HSPers on the northside of Brisbane. He also has connections with a heated pool for hydrotherapy sessions located nearby.”
Liz Harewood and Matthew Vincent
Allsports Physiotherapy & Sports Medicine Clinics
Forest Lake Blvd, Forest Lake, Brisbane
Ph: 3278 8544
Liz has worked in the rehabilitation field working with patients with neurological and balance disorders.
She has special interests in pelvic biomechanics and the use of dry needling and western acupuncture to reduce pain and restore normal muscle function.
Runs the hydrotherapy program conducted at the Forest Lake Aquatic Centre, and is qualified in the application of aquatic physiotherapy providing one on one treatment for all patient types.
Optimum Physio and Pilates
mob: 0450 675 117
Shop 1B/239-241 McLeod St., Cairns Qld 4870
Comments: Sophie specialises in neurological rehabilitation, with advanced training in the Bobath approach.
APA Neurological Physiotherapist
Neurospace, 10 Colbee Court, Phillip ACT 2606
Phone: 02 6162 0450
Email: [email protected]
Also utilises Skype for regional consults.
“I have been seeing Deborah at her practice for the past two years and have found her to be knowledgeable about HSP and effective treatments. This includes taking into consideration the goals and outcomes that I desire to achieve. With me being a person that needs to be constantly challenged with exercise and strength regimes, Deborah has been able to address these matters through presenting numerous regimes that keep me ‘challenged’, and motivated. Her constant encouragement, coupled with her expertise in neurological physiotherapy has produced what I consider as rapid improvements over time and the present stable nature of my condition.”
Physiotherapist- home physiotherapy service specialising in rehabilitation and Spinal Cord Injury
Harbord NSW 2096
ph: (02) 9905 9876 mobile: 0400 49 81 49
“Lea understands HSP and helps me understand things I can do to help myself including a regular program with particular stretches and exercises.”
Advance Rehab Centre – 2 locations in Sydney
5 George Place, Artarmon NSW 2064
ph: (02) 9906 7777
Level 1, 43 Bridge St, Hurstville NSW 2220
Read the community member recommendation for this practice.
Physiotherapist – home physiotherapy service specialising in neurodegenerative conditions.
Get Up and Go Physiotherapy
Newcastle/Hunter area NSW
mob: 0420 506 721
email: [email protected]
Ph: 1300 955 941 located at East Maitland near Newcastle
“Daniel and his team are all geared towards working with people with neurological diseases like HSP. At Neuro Alliance they are a young’ish team and are excellent for keeping ahead of current methods. A lot of what Daniel does is to prescribe a range of physical therapy programs and he is always mixing them up on you. This is so your body doesn’t get too used to doing an exercise and become lazy, he’s always pushing me further and further. Daniel’s help in therapy (gym for exercise/therapy program rather than “pumping iron”) and swimming has had a huge impact on my quality of life. He is also equipped to offer support when navigating the NDIS and works with OT’s, Speech Therapists’s, other Physio’s and knows a lot of great support workers.”
160 Unley Rd, Unley, SA 5061
Ph: (08) 8373 2132
216 Daws Rd, Daw Park SA 5051
5/259 Unley Road, Unley SA 5061
mobile: 0409 282 210
35 Hackney Rd, Hackney SA 5069
0405 384 825
Neurological Rehabilitation Group
Phone: 9803 7755
3rd floor, Suite 8, 205-211 Forster Road, Mount Waverley, VIC 3149.
201 Fitzroy Street, St Kilda, VIC 3181.
1/256 Bolton Street, Eltham, VIC 3095.
Anderson Neurological and Development
e: [email protected]
Suite 8, 10 Conochie Crescent, Manning WA 6152
Phone | 08 9313 3483
Unit 1, 11 Henley Drv., East Bunbury WA, 6230
Phone | 08 9721 3555
“A fantastic NeuroPhysio is Ruth Anderson. I’ve only seen her a couple of times but she really knows her stuff. She has loosened parts of me that I hadn’t realised were that tight, making things easier for me.”
Psychologists, Psychotherapists, Counsellors
for people with chronic neurological conditions such as HSP, their family and carers, dealing with adjustment to diagnosis; anxiety, stress, depression, pain and coping.
Phone: 0423 361 400
Email: [email protected]
Locations: Lower North Shore (St Leonards) and Inner West (Annandale) in Sydney
Medicare provider (rebates available for clinical psychology if referred by a GP or psychiatrist under a mental health care plan).
Mob: 0400 020 356
Email: [email protected]
Unit 15/2 King Street, Deakin ACT 2600
“What Jane seeks to do is to help me in my adjustment and adaptation to the constant challenges of living with HSP, and encourages and supports me in continuing to live a meaningful life. Highly recommended!”
Adding Your Recommendation
If you have a doctor, a physiotherapist, a neurologist, a podiatrist or other medical or allied health professional whom you are happy to recommend, then please let us know by providing the following information in the Comments box below:
- practitioner name:
- type of medical professional:
- contact details/location:
- comments e.g. what makes them good.
and click ‘Submit’.
Or email us us if you prefer.
There will be no attribution of your name to any of the resource information you provide.