The names and details below have been collected from you, the HSP community, and offered here as a resource to locate medical and allied health professionals. They are not a recommendation from the Foundation. You will need to assess the suitability of any particular practitioner for yourself.
Neurologists & Rehab Physicians
Rehabilitation Physician – spasticity management, gait management; Paediatric Rehab.
Assoc. Professor of Medicine, Monash University, Monash Medical Centre, Clayton.
Head of Rehabilitation at the Epworth Rehabilitation Centre, Brighton.
Medical Director of St John of God Healthcare, Nepean Rehabilitation.
Moorabbin Specialist Centre
873 Centre Rd,
Bentleigh East. Vic. 3165
Main office Phone: 03 9570 3300
“He is absolutely brilliant – he specialises in Neurology, Spinal Cord and Pain Rehabilitation.”
East Malvern, Melbourne. VIC
Ph: 03 9500 0172
“ … was onto it immediately and her helping me understand what I had; was extremely sensitively and intelligently handled.”
Neurogeneticist / Paediatric Neurologist
Suite 12, 212 Clayton Rd
phone 03 9542 0000
Neurologist / Neurogeneticist
Royal North Shore Hospital, Pacific Hwy, St Leonards NSW 2065
phone: 02 9926 8481
St Vincents Clinic, 438 Victoria Street, Darlinghurst NSW 2010
phone: 02 8382 6715
” … he is really good … asked about problems I had skateboarding as a kid … also identified that my mother who was with me has HSP”
Assoc Prof Michelle Farrar
Sydney Children’s Hospital
Randwick NSW 2031
Referral information – referral from specialists only by:
* fax to (02) 9382 1508, or
* postal mail to Dr Michelle Farrar, Neurology, Secretarial Admin Services, level 4, Sydney Children’s Hospital, High Street, Randwick NSW 2031
Ladhope Chambers, 131 Wickham Terrace, Brisbane 4000
phone 3831 1704
St. Andrew’s Place, 33 North St, Spring Hill 4000
ph 3832 0501
Paediatric and Adult Neurologist/Neurogeneticist
Mosman Park (private practice)
Royal Perth Hospital, Neurogenetics Unit (public system)
“Initially diagnosed me and has a good understanding of HSP.”
“Phillipa Lamont’s primary focus is the improvement of one’s quality of life. She has an extensive understanding and experience with a broad range of the issues that confront HSPers and is willing to advise and assist on all of the impacts of HSP.”
Adelaide, SA 5000
Phone: (08) 8222 5289
Dr. Robert Boland-Freitas
Neurologist and Neurophysiologist
Level 2 – 9/3 Sydney Avenue
Barton ACT 2600
P: 02 6152 8998
F: 02 6169 3198
E: [email protected]
“… quite patient and helpful”.
Physiotherapists & Neurophysiotherapists
Many with HSP benefit from a well designed program of stretching, strengthening and exercise for improved cardiovascular fitness, mobility and flexibility, and spasticity reduction.
If you have not already been to a physio, there may be significant benefits from doing so. Here’s how to find one:
The Australian Physiotherapy Association website has a ‘Find a Physio’ tool. The search function allows you to sort by Location and Clinical Area – choose ‘Neurology’, as a physiotherapist with a neurology interest is likely to be a good resource in developing a program for an HSPer.
Sarah Fitzhenry (Neurophysyiotherapist)
Caloudra Hospital Rehabilitation Team
3 West Terrace Caloundra 4551 Ph 07 5436 8886
“… Sarah and the team were able to do more to help me cope with this disease than anything else since I had been diagnosed a few years ago.”
North West Medical Centre
125 Flockton St.
Everton Park Queensland 4051
Ph: 3353 4111
Email: [email protected]
“Roger goes out of his way to meet my physical needs and has given me a better quality of life. I would highly recommend him to other HSPers on the northside of Brisbane. He also has connections with a heated pool for hydrotherapy sessions located nearby.”
Liz Harewood and Matthew Vincent – Allsports Physiotherapy & Sports Medicine Clinics
Forest Lake Blvd
Ph: 3278 8544
Liz has worked in the rehabilitation field working with patients with neurological and balance disorders.
She has special interests in pelvic biomechanics and the use of dry needling and western acupuncture to reduce pain and restore normal muscle function.
Runs the hydrotherapy program conducted at the Forest Lake Aquatic Centre, and is qualified in the application of aquatic physiotherapy providing one on one treatment for all patient types.
APA Neurological Physiotherapist
Neurospace, 10 Colbee Court, Phillip ACT 2606
Phone: 02 6162 0450
Email: [email protected]
Also utilises Skype for regional consults.
“I have been seeing Deborah at her practice for the past two years and have found her to be knowledgeable about HSP and effective treatments. This includes taking into consideration the goals and outcomes that I desire to achieve. With me being a person that needs to be constantly challenged with exercise and strength regimes, Deborah has been able to address these matters through presenting numerous regimes that keep me ‘challenged’, and motivated. Her constant encouragement, coupled with her expertise in neurological physiotherapy has produced what I consider as rapid improvements over time and the present stable nature of my condition.”
Physiotherapist- home physiotherapy service specialising in rehabilitation and Spinal Cord Injury
Harbord NSW 2096
ph: (02) 9905 9876 mobile: 0400 49 81 49
“Lea understands HSP and helps me understand things I can do to help myself including a regular program with particular stretches and exercises.”
Advance Rehab Centre
3/41 Herbert St
St.Leonards NSW 2065
ph: (02) 9906 7777
Read the community member recommendation for this practitioner.
Physiotherapist – home physiotherapy service specialising in neurodegenerative conditions.
Get Up and Go Physiotherapy
Newcastle/Hunter area NSW
mob: 0420 506 721
email: [email protected]
Ph: 1300 955 941 located at East Maitland near Newcastle
“Daniel and his team are all geared towards working with people with neurological diseases like HSP. At Neuro Alliance they are a young’ish team and are excellent for keeping ahead of current methods. A lot of what Daniel does is to prescribe a range of physical therapy programs and he is always mixing them up on you. This is so your body doesn’t get too used to doing an exercise and become lazy, he’s always pushing me further and further. Daniel’s help in therapy (gym for exercise/therapy program rather than “pumping iron”) and swimming has had a huge impact on my quality of life. He is also equipped to offer support when navigating the NDIS and works with OT’s, Speech Therapists’s, other Physio’s and knows a lot of great support workers.”
160 Unley Rd
Unley, SA 5061
Ph: (08) 8373 2132
216 Daws Rd
Daw Park SA 5051
5/259 Unley Road
Unley SA 5061
mobile: 0409 282 210
35 Hackney Rd
Hackney SA 5069
0405 384 825
Neurological Rehabilitation Group
Phone: 9803 7755
3rd floor, Suite 8, 205-211 Forster Road
Mount Waverley, VIC 3149.
201 Fitzroy Street
St Kilda, VIC 3181.
1/256 Bolton Street
Eltham, VIC 3095.
Psychologists, Psychotherapists, Counsellors
for people with chronic neurological conditions such as HSP, their family and carers, dealing with adjustment to diagnosis; anxiety, stress, depression, pain and coping.
Phone: 0423 361 400
Email: [email protected]
Locations: Lower North Shore (St Leonards) and Inner West (Annandale) in Sydney
Medicare provider (rebates available for clinical psychology if referred by a GP or psychiatrist under a mental health care plan).
Mob: 0400 020 356
Email: [email protected]
Unit 15/2 King Street
Deakin ACT 2600
“What Jane seeks to do is to help me in my adjustment and adaptation to the constant challenges of living with HSP, and encourages and supports me in continuing to live a meaningful life. Highly recommended!”
Adding Your Recommendation
If you have a doctor, a physiotherapist, a neurologist, a podiatrist or other medical or allied health professional whom you are happy to recommend, then please let us know by providing the following information in the Comments box below:
- practitioner name:
- type of medical professional:
- contact details/location:
- comments e.g. what makes them good.
and click ‘Submit’.
Or email us us if you prefer.
There will be no attribution of your name to any of the resource information you provide.