Survey for HSPers

Posted - December 2015 in HSPRF News

Questions on home modifications and other topics

 

Adam Lawrence

Adam Lawrence

Adam Lawrence, an HSPer from the UK, has launched a new survey for HSPers in what has become an annual event. The survey takes about 20 min to complete.

 

Adam says, “After the success of my previous surveys, I’m continuing the pattern with a new survey this year.

My main focus for this survey is understanding the modifications which people make around their homes to live with HSP. I also touch on depression and quality of life.

Following the previous pattern, I will collect results until around the end of the year and analyse these to publish on rare disease day 29th Feb 2016.

Also like before, all questions are optional, and I don’t collect any personal info apart from your name. If you took part last time, I’d appreciate using the same name to allow tracking.

At the moment I have 68 responses mostly from the UK, USA, Canada and Australia. People with a range of mobilities have responded, and there is a corresponding range of modifications. The most common ones seem to be:
·        stairlifts,
·        getting doors widened,
·        adding grab-rails,
·        changing heights of beds/chairs/toilets, and
·        various conversions from baths through showers to wetrooms.

I would appreciate any readers with HSP to complete the survey: http://www.surveygizmo.com/s3/2310166/d1b822668a8e

 

Comments on this story

  1. KAREN posted at 1:02 pm on 26 January 2016Reply

    hi there,

    I am in a wheelchair cannot walk. is there ever going to be a cure. My legs shake more and more. I don’t want a pump, but something to stop the fluttering of my legs

    signed a hsp person I want to walk, my legs are so stiff

    😎

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