Synapse (USA) and HSP Newslink (UK)

News from other HSP groups


The SP Foundation USA has published the Winter 2020 edition of its newsletter Synapse.


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The 20 page Winter 2020 edition of Synapse contains the President’s letter; information on the Annual Conference for 2020; an article entitled Resilience Matters (part 2); a report on the first HSP symposium in Brazil; the importance of a strong support network; having more than one disability… And more!

    • $870,000 raised in 2019, a 32% increase year over year
    • $624,000 directly going to fund research
    • initiating a Youth Council
    • 2020 Annual Conference will be in Nashville, TN June 25-28.
    • First Brazilian Hereditary Spastic Paraplegia Symposium 
    • Importance of a Strong Support Network
    • Party of More Than One When You Have More Than One Disability
    • The Lab Rat Clause – book by an HSPer



HSP Newslink, the newsletter of the HSP support group in the UK, Issue 48 was published in January 2020.

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The 16 page January 2020 edition of HSP Newslink from the UK group opens with the report of a week-long adventure holiday for people with disability on a farm in Exmoor. The fun and games included kayaking, abseiling, zip wiring, horse riding, crate stacking (you’ll have to read for yourself!), biking, archery and swimming.

    • Adventure holiday
    • Chairman’s column
    • Editor’s column
    • SPATAX Meeting Report, Nice, September 2019
    • For my Mum – because she is a hero!
    • Spreading the word about HSP
    • Fundraising News
    • Branch Meetings and Forthcoming Events

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