Posted - May 2016 in Your Say
As a rare disease in a big country like Australia, the main way to get and stay connected with HSP issues and participate in the HSP community is this website – the hub of the community – to keep up to date with all the latest HSP research, and news and information about the Foundation, the community and the people in it.
- To make comments, just click and type in the Comments box that can be found at the bottom of every article
- To send an inquiry, e-mail to: [email protected]
- To have your say, email to: [email protected]
The Winter 2017 edition of the website will be published in early June.