Summer 2017 edition of the website published 2 December

Posted - May 2016 in Your Say

As a rare disease in a big country like Australia, the main way to get and stay connected with HSP issues and participate in the HSP community is this website – the hub of the community – to keep up to date with all the latest HSP research, and news and information about the Foundation, the community and the people in it.



The Autumn 2018 edition of the website will be published in early March.

Comments on this story

  1. Suzanne posted at 1:46 pm on 28 September 2017Reply

    Could a member please give any information out there on lower back pain when standing … not when sitting. This has been going on for some time now and I would like to hear from anyone else that may suffer this so we can swap ideas and look at possible remedies
    Many thanks in advance
    Suzanne W.

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