Posted - February 2019 in Living with HSP - Management & Treatment News
New findings from large study
3 out of 4 people who have had HSP for an average of 21 years and who have an average age of 55 years have urinary problems, most commonly the need to pee during the night and urgency to pee. Women and people with SPG4 type HSP peed more often and experienced more severe urological problems, leading to a reduced overall quality of life.
Urinary involvement is common in hereditary spastic paraplegias (HSPs), but has rarely been assessed systematically.
We characterized urinary complaints in 71 German HSP patients (mean age 55.4 ± 13.9 years; mean disease duration 20.7 ± 14.3 years; 48% SPG4-positive) using validated clinical rating scales (SCOPA-AUT, ICIQ-SF, ICIQ-LUTSqol). Treatment history and satisfaction with medical care was also assessed.
74.6% of patients had one or more urological problems, most commonly nocturia and urgency. Incontinence was more severe in women, correlating with SCOPA-AUT. Female gender and SPG4 mutations were associated with higher urinary frequency and severity of urological involvement. QoL was overall reduced, more in women and in SPG4 mutation carriers. Almost 90% consulted a medical specialist; more than half were largely satisfied. 43.4% received oral medication and 5.7% received intravesical botulinum toxin. However, more than one-third of patients remained untreated.
Urinary complaints are common in HSP and should be addressed and treated.
SOURCE: J Neurol. 2019 Jan;266(1):207-211. doi: 10.1007/s00415-018-9129-8. Epub 2018 Nov 22. PMID: 30467602
Urinary symptoms, quality of life, and patient satisfaction in genetic and sporadic hereditary spastic paraplegia.
- Department of Neurology, Christian-Albrechts-University Kiel, Kiel, Germany. [email protected]
- Department of Neurology, Ludwig-Maximilians-University München, Feodor-Lynen-Straße 19, 81377, Munich, Germany. [email protected]
- Department of Neurology, Christian-Albrechts-University Kiel, Kiel, Germany.
- Department of Urology, Christian-Albrechts-University Kiel, Kiel, Germany.
New urinary incontinence underwear for women
Washable cotton, absorbent and comfortable
A new product Giggle Knickers from the UK is now available in Australia via their website https://www.giggleknickers.co.uk/ for women dealing with urinary incontinence. They come in a brief or high waisted style in a range of sizes at a cost of around $40 AUD delivered.
Giggle Knickers describe their product as a new super-soft, light weight, washable cotton knicker with a hi-tech protective panel that keeps you and your clothing dry, for women with a sensitive bladder, which they say is (for different reasons) 1 in 3 women! All this without the bulk or bother of disposable pads. And all those trashed sanitary items are getting to be a big problem around the world!
Designed by an award-winning online fashion retailer and design director, Giggle Knickers are the result of a personal quest to find a stylish, comfortable and environmentally-friendly solution to the accidental leaks of stress incontinence.
The knickers are designed to be discreet, absorbent, comfortable – and washable! Their website tells of the technology that keeps you dry without pooling and stops clothes getting damp.
Look to their website to see styles BRIEF and HIGH WAISTED and for pricing and sizing information. They ship worldwide.