US and UK HSP groups Newsletters

News, views and information from America and England

The Fall 2016 edition of the US Newsletter Synapse is now available for download at:


This edition includes highlights from the Annual Conference; Board approval of $400,000 for research grants in 2016; three new Board members appointed; and a huge variety of topics crammed into 16 pages.



The September 2016 issue of the UK HSP Newslink newsletter can be downloaded here: newslink-sep2016

Headlining the issue is a report on their first ever Potato Pants Festival that was both huge and successful. It really shows that Potato Pants is an excellent vehicle for HSP marketing, information, raising public awareness and funding The edition runs to 14 pages and is a great read.


A ‘Rare Song’ from Norway

Here is a cute song about living with a rare genetic condition  –  check it out!

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