US support group

Latest newsletter

HSP support group, the Spastic Paraplegia Foundation (SPF) in the US has published its Winter 2021 newsletter.

Synapse, Winter 2021

Newsletter highlights include:

  • President’s Letter, Print Too Small?
  • A Chance Encounter
  • PLS and My Travel Bug
  • A Crushing Moment of Fear
  • Blessed Beyond Measure
  • My Journey with Hereditary Spastic Paraparesis/Paraplegia
  • A Long Walk to Non-Freedom
  • SPIllinois Connection Zoom
  • The Fifteen-Year Odyssey to Diagnosis: An All Too Familiar Story
  • What’s in a Name?
  • My Children’s HSP Journeys
  • Making Diamonds
  • Brain Tissue Donation to Help HSP Research
  • Yoga Changed My Life
  • En Pointe: Ballet as Therapy
  • When You Are Ready to SCOOT
  • Making Strides with the WalkAide
  • Life After Diagnosis: Learning to Thrive with PLS
  • Meet Founder Joe Alberstadt
  • North Texas Virtual Connection
  • Iowa Virtual Connection
  • Adli Does It Again!
  • All the Way Up – My PLS Journey


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