US support group

Latest newsletter

HSP support group, the Spastic Paraplegia Foundation (SPF) in the US has published its Winter 2021 newsletter.

Synapse, Winter 2021

Newsletter highlights include:

• President’s Letter, Print Too Small?
• A Chance Encounter
• PLS and My Travel Bug
• A Crushing Moment of Fear
• Blessed Beyond Measure
• My Journey with Hereditary Spastic Paraparesis/Paraplegia
• A Long Walk to Non-Freedom
• SPIllinois Connection Zoom
• The Fifteen-Year Odyssey to Diagnosis: An All Too Familiar Story
• What’s in a Name?
• My Children’s HSP Journeys
• Making Diamonds
• Brain Tissue Donation to Help HSP Research
• Yoga Changed My Life
• En Pointe: Ballet as Therapy
• When You Are Ready to SCOOT
• Making Strides with the WalkAide
• Life After Diagnosis: Learning to Thrive with PLS
• Meet Founder Joe Alberstadt
• North Texas Virtual Connection
• Iowa Virtual Connection
• Adli Does It Again!
• All the Way Up – My PLS Journey