US Synapse and German TWS newsletters

Posted - June 2019 in HSPRF News

Learn what is happening in other HSP groups around the world

 

 

Synapse, Spring 2019

The SP Foundation USA has published the Spring 2019 edition of its newsletter Synapse

 

Summary

  • SPF President speaks of Annual Event June 21-22 in San Antonio Texas
  • New Board Member – Carina Thurgood of UK’s The Maddi Foundation (SPF15)
  • Members Connections
  • Membership Fundraising Efforts
  • General Interest
  • Surgical Anesthesia in HSP and PLS
  • Why getting a Gene Test is so Important
  • Travel Turmoil.

 

 

 

TWS Magazine 2019

The TWS Magazine has just been published in both German and English following the 20 year anniversary of the Tom Wahlig Foundation

 

Summary

  • Review of Anniversary Celebrations including an Art Exhibition Opening
  • Stories of people with HSP taking on challenges
  • Research funding by the TWS of three current projects and review of the 17th annual symposium
  • Disability friendly guided tours of cultural and artistic heritage sites in Weimar
  • Foundation fundraising and calendar for 2019

 

 

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