Learn what is happening in other HSP groups around the world
The SP Foundation USA has published the Spring 2019 edition of its newsletter Synapse
Summary
- SPF President speaks of Annual Event June 21-22 in San Antonio Texas
- New Board Member – Carina Thurgood of UK’s The Maddi Foundation (SPF15)
- Members Connections
- Membership Fundraising Efforts
- General Interest
- Surgical Anesthesia in HSP and PLS
- Why getting a Gene Test is so Important
- Travel Turmoil.
The TWS Magazine has just been published in both German and English following the 20 year anniversary of the Tom Wahlig Foundation
Summary
- Review of Anniversary Celebrations including an Art Exhibition Opening
- Stories of people with HSP taking on challenges
- Research funding by the TWS of three current projects and review of the 17th annual symposium
- Disability friendly guided tours of cultural and artistic heritage sites in Weimar
- Foundation fundraising and calendar for 2019