Posted - September 2011 in HSPRF News
Read about the activities and news in the Summer (USA) 2011 edition of Synapse, the newsletter of the SP Foundation in the USA.
Here are some highlights …
- Million Dollar Campaign: In 2010 the SPF raised around $800,000. The goal for 2011 is $1,000,000 with the Million Rays of Hope campaign.
- Expanding the SPF: In anticipation of future clinical trials, an initiative to increase numbers… currently 2,600, which is 10% of the projected HSP/PLS population in the US and Canada.
- The NEALS task force has formed a scientific advisory board to evaluate compounds as possible candidates for clinical trials.
- Stand Tall!, by physiotherapist Liz Wrobleski, an article about the importance (especially for those who use wheelchairs or scooters) of standing.