Autumn edition of the website published 28 February 2016

Posted - June 2015 in Your Say

As a rare disease in a big country like Australia, the main way to get and stay connected with HSP issues and participate in the HSP community is this website – the hub of the community – to keep up to date with all the latest HSP research, and news and information about the Foundation, the community and the people in it, to make comments, to send us an inquiry e-mail or to have your say.

The Winter 2016 edition of the website will be published in early June.

Comments on this story

  1. Salvatore posted at 3:50 am on 22 December 2015Reply

    Hi, I’m the father of a 16 year old girl living in Italy, specifically in Naples. From 2011 she has had the pure SPG7 form of spastic paraplegia. For the New Year we are very hopeful that we will secure good news.

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