As a rare disease in a big country like Australia, the main way to get and stay connected with HSP issues and participate in the HSP community is this website – the hub of the community – to keep up to date with all the latest HSP research, and news and information about the Foundation, the community and the people in it, to make comments, to send us an inquiry e-mail or to have your say.
The Spring 2014 edition of the website will be published in early September.