Your Say

Speech difficulties with HSP

Has anyone been to a speech pathologist?

8 comments

Foot pronation and pain

Is this associated with HSP?

Autumn edition of the website published 28 February 2016

The Winter 2016 edition of the website will be published in early June.

1 comment

HSP and chemotherapy

Any feedback appreciated

Autumn edition published 28 February 2015

Winter 2015 edition published early June

Telling children about HSP

If, when and how?

7 comments

Kenneth Ware therapy

Has anyone tried it?

3 comments

Medical cannabis

Anyone tried it for HSP?

20 comments

Summer edition published 4 December, 2014

Autumn edition to be published in early March

Private disability insurance policy

has anyone received a payout?

4 comments

Winter edition published 6 June 2014

Spring 2014 edition in early September

Botox warning

Adverse reaction to larger dose

Disability Pension and HSP

Request for information and advice

12 comments

Winter edition published 6 June 2014

Spring 2014 edition in early September

Swollen feet and legs

related to HSP?

5 comments

Summer edition published 1 December 2013

Autumn 2014 edition in early March

MS drug for HSP?

HSPer trys Fampradine (Fampyra)

2 comments

2014 Annual General Meeting of the Foundation

Important documents here

Spring edition published 1 September 2013

Summer edition in early December

HSP and neuropathy

Ideas for treating the pain?

4 comments
Rare Disease Day 2019