Fitness – a key to maintaining mobility for HSPers Part 1 of a 2 part series. (Read Part 2) by Lea McQuade, Physiotherapist* The Importance of Fitness Getting fit and staying fit is probably the single most important thing anyone with HSP can do to manage symptoms and maintain maximum mobility for as long as… Continue reading Fitness – a Key for HSPers
Living with HSP – Management & Treatment News
WE MOVE Spasticity Survey
Invitation to Participate WE MOVE is a not-for-profit organization that utilizes creativity, innovation, and collaborative approaches to improve awareness, diagnosis, and management of movement disorders among people living with these conditions and the professionals who care for them. To better understand the management of spasticity, WE MOVE is Participation in this survey is voluntary, confidential… Continue reading WE MOVE Spasticity Survey
Whirlwind Wheelchair
Breakthrough in design and function
Cursed by her genes
Krystal changes her destiny
Marina’s story
13yr old girl with HSP
Benefits of strength training
MolMed complete 100th test
Australian Gene Testing Service milestone
MolMed Laboratory
Genetic tests rise, staff struggle
Policy, funding issues emerge
Wheelies tow air freighter
A team of wheel-chaired folks in the UK
Metabolic cause of some spastic paraplegia
Another compelling reason for gene testing