Exploring home & living solutions, having independence
Living with HSP – Management & Treatment News
COVID pandemic still with us
What you need to know
For parents of children with HSP
Take a Survey to help research
HSP orthotic wins student design prize
Victorian HSP family the motivation
9th Annual Survey of HSPers globally
Data on wellbeing, relationships, acceptance
Childhood-onset HSP cases reviewed
8 years from symptoms to genetic diagnosis
Trunk movement and balance in HSP
How they are related and why
Genetic testing diagnostic rate improved
Full clinical picture & revisiting test results important
Disclosing diagnosis to loved ones
How, when, where is best?
Intra-thecal Baclofen (ITB) in HSP children
Treatment success in managing spasticity