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Living with HSP – Management & Treatment News

Upcoming webinar, 20 June

Exploring home & living solutions, having independence

COVID pandemic still with us

What you need to know

For parents of children with HSP

Take a Survey to help research

HSP orthotic wins student design prize

Victorian HSP family the motivation

9th Annual Survey of HSPers globally

Data on wellbeing, relationships, acceptance

Childhood-onset HSP cases reviewed

8 years from symptoms to genetic diagnosis

Trunk movement and balance in HSP

How they are related and why

Genetic testing diagnostic rate improved

Full clinical picture & revisiting test results important

Disclosing diagnosis to loved ones

How, when, where is best?

Intra-thecal Baclofen (ITB) in HSP children

Treatment success in managing spasticity

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Page 1 … Page 32 Older posts

HSP Research Foundation

Welcome to the HSP Research Foundation - created in 2005 to find a cure for Hereditary Spastic Paraplegia - an inherited, degenerative disease affecting mainly the legs, causing muscle weakness, spasticity and severely impairing walking. Read more »

Information on this website and resources to which we have links are general knowledge about HSP. We are not medical professionals, nor do we offer medical advice. Always consult your own medical professionals regarding your particular circumstances.

Registered charity

The HSP Research Foundation Incorporated ABN 46648875912 is an Income Tax Exempt Charity endorsed by the ATO as a Deductible Gift Recipient organisation.

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