Living with HSP – Management & Treatment News
Results of Annual Survey of HSPers
Posted - May 2020 in Living with HSP - Management & Treatment News
Data on wellbeing, mobility, medication
COVID-19, stress & gait deterioration
Posted - in Living with HSP - Management & Treatment News
HSPers share their experiences
Combined Botox & physio treatment success
Posted - in Living with HSP - Management & Treatment News
Improvement in spasticity & quality of life
The burden of living with pure HSP
Posted - in Living with HSP - Management & Treatment News
Large survey conducted in the Netherlands
Care needed for anaesthesia in HSP
Posted - February 2020 in Living with HSP - Management & Treatment News
Successful formula reported in a recent study
Alinker walking bike
Posted - in Living with HSP - Management & Treatment News
Making a huge mobility difference
Inspirational Welsh teenager Lily Rice
Posted - in Living with HSP - Management & Treatment News
Wins first world title in wheelchair motocross
Global golf movement for people with disability
Posted - in Living with HSP - Management & Treatment News
HSPer working to increase accessability
Facing adversity due to disability
Posted - in Living with HSP - Management & Treatment News
Patience, ambition and pragmatism
Learning more about your genetic type
Posted - in Living with HSP - Management & Treatment News
New data sharing tool VariantMatcher
Non-motor symptoms in SPG4 HSP
Posted - December 2019 in Living with HSP - Management & Treatment News
Potential response to treatment
Mixed urinary incontinence in women
Posted - in Living with HSP - Management & Treatment News
Dramatic improvement in symptoms with surgery
Intrathecal baclofen study very positive
Posted - in Living with HSP - Management & Treatment News
Significant long-term improvements in spasticity
New mobility device invented
Posted - in Living with HSP - Management & Treatment News
Designed to replace both walker and wheelchair
2019 HSP Survey
Posted - in Living with HSP - Management & Treatment News
Focus on medication, exercise
HSPer regaining lost mobility
Posted - in Living with HSP - Management & Treatment News
Intensive neurological physiotherapy helps
Empowering children in HSP families
Posted - in Living with HSP - Management & Treatment News
Choice about gene tests
More challenge needed in daily life
Posted - September 2019 in Living with HSP - Management & Treatment News
Using skills and social interaction are key to well-being
Wheelchair Gardening … is that a thing?
Posted - in Living with HSP - Management & Treatment News
The power of the positive & being outdoors
Cognitive profiles of HSPers studied
Posted - in Living with HSP - Management & Treatment News
Significant impairments found to be frequent
