Living with HSP – Management & Treatment News
Global golf movement for people with disability
Posted - February 2020 in Living with HSP - Management & Treatment News
HSPer working to increase accessability
Facing adversity due to disability
Posted - in Living with HSP - Management & Treatment News
Patience, ambition and pragmatism
Learning more about your genetic type
Posted - in Living with HSP - Management & Treatment News
New data sharing tool VariantMatcher
Non-motor symptoms in SPG4 HSP
Posted - December 2019 in Living with HSP - Management & Treatment News
Potential response to treatment
Mixed urinary incontinence in women
Posted - in Living with HSP - Management & Treatment News
Dramatic improvement in symptoms with surgery
Intrathecal baclofen study very positive
Posted - in Living with HSP - Management & Treatment News
Significant long-term improvements in spasticity
New mobility device invented
Posted - in Living with HSP - Management & Treatment News
Designed to replace both walker and wheelchair
2019 HSP Survey
Posted - in Living with HSP - Management & Treatment News
Focus on medication, exercise
HSPer regaining lost mobility
Posted - in Living with HSP - Management & Treatment News
Intensive neurological physiotherapy helps
Empowering children in HSP families
Posted - in Living with HSP - Management & Treatment News
Choice about gene tests
More challenge needed in daily life
Posted - September 2019 in Living with HSP - Management & Treatment News
Using skills and social interaction are key to well-being
Wheelchair Gardening … is that a thing?
Posted - in Living with HSP - Management & Treatment News
The power of the positive & being outdoors
Cognitive profiles of HSPers studied
Posted - in Living with HSP - Management & Treatment News
Significant impairments found to be frequent
Simple, home-based exercise successful
Posted - in Living with HSP - Management & Treatment News
Fitness, flexibility & strength maintained
Botox for hip adductor spasticity
Posted - June 2019 in Living with HSP - Management & Treatment News
Improves walking stability and speed
Assessing impaired social cognitive function
Posted - in Living with HSP - Management & Treatment News
Good treatment linked to good assessment
High prevalence of urinary issues in HSP
Posted - in Living with HSP - Management & Treatment News
Assessment and management helps avoid complications
Spasticity and its impacts
Posted - in Living with HSP - Management & Treatment News
Stumbling, struggling and shame
Hands free wheelchair
Posted - in Living with HSP - Management & Treatment News
Handles rough terrain
Results of survey of HSPers
Posted - in Living with HSP - Management & Treatment News
Misdiagnosis, other health conditions, well-being and mobility
