Living with HSP – Management & Treatment News
Living with a rare disease
Posted - June 2018 in Living with HSP - Management & Treatment News
New thinking, new ideas
Comparing intrathecal vs oral baclofen
Posted - in Living with HSP - Management & Treatment News
Evaluating intrathecal delivery system
‘Living with the Enemy’
Posted - in Living with HSP - Management & Treatment News
Coping with the stress of a chronic condition
New genotype – phenotype correlations found in paediatric HSP
Posted - in Living with HSP - Management & Treatment News
Warning on imitations of current methodologies
Voice problem found in case of SPG7 HSP
Posted - in Living with HSP - Management & Treatment News
Effective treatment available
Genetics company promotes rare disease registries
Posted - in Living with HSP - Management & Treatment News
Connecting with research, clinical trials management
“You’ve got HSP …”
Posted - February 2018 in Living with HSP - Management & Treatment News
“There is nothing that can be done”
Mobile phone app for wheelchair users
Posted - in Living with HSP - Management & Treatment News
Help with travel planning and getting around
Bike Skills Program for HSP kids
Posted - in Living with HSP - Management & Treatment News
Monash Children’s Hospital, Victoria
Being cold makes walking with HSP difficult
Posted - in Living with HSP - Management & Treatment News
But does warming the legs help?
Improving balance … what works better?
Posted - in Living with HSP - Management & Treatment News
Real-world tasks or Virtual Reality games?
Bone density lower in HSPers
Posted - in Living with HSP - Management & Treatment News
Testing and treatment recommended
SPG7 HSP more common in Australia
Posted - December 2017 in Living with HSP - Management & Treatment News
Genetic testing providing insight
Are you planned for an emergency?
Posted - in Living with HSP - Management & Treatment News
Be your own ‘first responder’
2017 Survey of HSPers now available
Posted - in Living with HSP - Management & Treatment News
Focus on jobs, walking, well-being and pain
Improving balance to prevent falls
Posted - in Living with HSP - Management & Treatment News
Focus on front to back sway
Large gait study of HSP, CA and PD
Posted - in Living with HSP - Management & Treatment News
Confirms HSP gait as highly variable
Botox plus serial casting more effective
Posted - September 2017 in Living with HSP - Management & Treatment News
Children with scissor gait can benefit
Life insurance and genetic testing
Posted - September 2017 in Living with HSP - Management & Treatment News
Discrimination happening in Australia
Adaptive sports for HSPers
Posted - in Living with HSP - Management & Treatment News
Three young HSPers making a difference
