Living with HSP – Management & Treatment News

Life insurance and gene testing

Posted - December 2018 in Living with HSP - Management & Treatment News

Criticism of new insurance industry proposal

2018 Survey of HSPers now available

Posted - in Living with HSP - Management & Treatment News

Focus on symptoms, sleep, activities, misdiagnosis

Issues with the Baclofen Pump

Posted - in Living with HSP - Management & Treatment News

And a solution for one Paralympic athlete

Alternative spinal pathway tested in HSP

Posted - in Living with HSP - Management & Treatment News

Failed to normalise muscle control and gait

Survival tips for caregivers

Posted - September 2018 in Living with HSP - Management & Treatment News

Ask for help, take time for yourself

Daily duration stretching pays off

Posted - in Living with HSP - Management & Treatment News

Improved mobility and range of motion

Living with a rare disease

Posted - June 2018 in Living with HSP - Management & Treatment News

New thinking, new ideas

‘Living with the Enemy’

Posted - in Living with HSP - Management & Treatment News

Coping with the stress of a chronic condition

Genetics company promotes rare disease registries

Posted - in Living with HSP - Management & Treatment News

Connecting with research, clinical trials management

“You’ve got HSP …”

Posted - February 2018 in Living with HSP - Management & Treatment News

“There is nothing that can be done”

Mobile phone app for wheelchair users

Posted - in Living with HSP - Management & Treatment News

Help with travel planning and getting around

Bike Skills Program for HSP kids

Posted - in Living with HSP - Management & Treatment News

Monash Children’s Hospital, Victoria