Living with HSP – Management & Treatment News
Life insurance and gene testing
Posted - December 2018 in Living with HSP - Management & Treatment News
Criticism of new insurance industry proposal
2018 Survey of HSPers now available
Posted - in Living with HSP - Management & Treatment News
Focus on symptoms, sleep, activities, misdiagnosis
Issues with the Baclofen Pump
Posted - in Living with HSP - Management & Treatment News
And a solution for one Paralympic athlete
High rate of urinary symptoms in older HSPers
Posted - in Living with HSP - Management & Treatment News
Impaired bladder function the main cause
Alternative spinal pathway tested in HSP
Posted - in Living with HSP - Management & Treatment News
Failed to normalise muscle control and gait
Victorian HSPer takes up rowing
Posted - in Living with HSP - Management & Treatment News
Encourages others to try it
Survival tips for caregivers
Posted - September 2018 in Living with HSP - Management & Treatment News
Ask for help, take time for yourself
Daily duration stretching pays off
Posted - in Living with HSP - Management & Treatment News
Improved mobility and range of motion
Lack of movement has negative impacts
Posted - in Living with HSP - Management & Treatment News
Brain and nerves affected
Botox effects on kids and adults with HSP
Posted - in Living with HSP - Management & Treatment News
The findings of two studies
Is muscle growth impaired in HSP kids?
Posted - in Living with HSP - Management & Treatment News
Earliest age of onset are most affected
Living with a rare disease
Posted - June 2018 in Living with HSP - Management & Treatment News
New thinking, new ideas
Comparing intrathecal vs oral baclofen
Posted - in Living with HSP - Management & Treatment News
Evaluating intrathecal delivery system
‘Living with the Enemy’
Posted - in Living with HSP - Management & Treatment News
Coping with the stress of a chronic condition
New genotype – phenotype correlations found in paediatric HSP
Posted - in Living with HSP - Management & Treatment News
Warning on imitations of current methodologies
Voice problem found in case of SPG7 HSP
Posted - in Living with HSP - Management & Treatment News
Effective treatment available
Genetics company promotes rare disease registries
Posted - in Living with HSP - Management & Treatment News
Connecting with research, clinical trials management
“You’ve got HSP …”
Posted - February 2018 in Living with HSP - Management & Treatment News
“There is nothing that can be done”
Mobile phone app for wheelchair users
Posted - in Living with HSP - Management & Treatment News
Help with travel planning and getting around
Bike Skills Program for HSP kids
Posted - in Living with HSP - Management & Treatment News
Monash Children’s Hospital, Victoria
