SPG56 gene therapy the goal
Foundation News
NDIS update
Huge budget cuts to NDIS spending announced
Sacrifice, Failure, Resilience & Excellence
Paralympian swimming gold medalist speaks
Huge lack of clinical trial transparency
FDA criticised for neglect and lack of enforcement
HSP group in the US
Latest newsletter
Vale Alan Mackay-Sim
Outstanding scientist & dear friend of the HSP community
Rare Disease Day, 28 February
Celebrate Rare Disease Day to raise public awareness
Adelaide Open Garden event, 11 – 13 March
Fundraiser for HSP research
Recent Social Events
Adelaide, Hobart, Melbourne
SP Foundation (US) research funding awards
Over $1 million goes to 7 projects