HSPRF News

News from US and UK support groups

Posted - September 2020 in HSPRF News

Annual conferences and newsletters

Research Program update September 2020

Posted - in HSPRF News

Clinical trial in advanced planning stage

Covid’s impact on living with HSP

Posted - in HSPRF News

Trying times for many

Lily Rice now a world champion

Posted - in HSPRF News

Battled back after injury

NDIS update September 2020

Posted - in HSPRF News

Participant Service Charter introduced

Having babies & genetic testing in HSP

Posted - in HSPRF News

Decisions, decisions? Take the survey!

Young Carer Bursary Program

Posted - in HSPRF News

Supporting carers’ education

People with SPG30 HSP wanted

Posted - in HSPRF News

Invitation to participate in research

HSP clinical trial program update June 2020

Posted - May 2020 in HSPRF News

Progress in pre-clinical studies

NDIS update June 2020

Posted - in HSPRF News

More flexibility with using funds

COVID-19 Impact Survey

Posted - in HSPRF News

HSP families invited to participate

COVID-19 journal study

Posted - in HSPRF News

Participation invited

Rural Fire Service volunteer with HSP

Posted - in HSPRF News

Challenges faced with the bushfires

Melbourne HSPer tries footy

Posted - in HSPRF News

Hawthorn AFL Club program

Registry established for SPG11 and SPG15

Posted - in HSPRF News

Participation invited

Tom Wahlig Foundation grants 2020

Posted - in HSPRF News

3 first-class proposals receive funding

HSP clinical trial program update March 2020

Posted - February 2020 in HSPRF News

Progress in preclinical studies

Rare Disease Day

Posted - in HSPRF News

29 February 2020

NDIS update March 2020

Posted - in HSPRF News

3 reports about the scheme

HSP Community News

Posted - in HSPRF News

Fundraising & a social in Brisbane