Challenging environment for progress
Foundation News
Fundraising in 2021
On the way to a record year
Developing therapies & preventative strategies
Top priority for people with rare neurological diseases
HSPer works with sick kids
So does her dog!
Talking about disability
2 Models & 4 Golden Rules
Commercial considerations undermining drug development
Rare disease communities most affected
US & UK HSP support groups
Latest Newsletters
NDIS Update September 2021
Concern mounting
Research program update March 2021
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Rare Disease Day 28 February
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