HSPRF News

HSP research program update September 2017

Posted - September 2017 in HSPRF News

Drug dose modelling study initiated

The 2017 ‘Potato Pants’ Festival

Posted - in HSPRF News

Raising awareness of HSP in the UK

Trekking in Nepal

Posted - in HSPRF News

HSP community member’s adventure

SP Foundation Annual Conference 2017

Posted - in HSPRF News

Presentations on HSP and PLS

NDIS update September 2017

Posted - in HSPRF News

Planning process under fire

Swimming for HSP research

Posted - in HSPRF News

Donation campaign at Lake Constance, Germany

Social Get Togethers in NSW and Qld

Posted - in HSPRF News

Helping build community

HSP Research Program update June 2017

Posted - June 2017 in HSPRF News

Focus on pre-clinical investigations

Happy with your neurologist or physio?

Posted - in HSPRF News

Recommend them to the HSP community

Just who is Alan Mackay-Sim?

Posted - in HSPRF News

A personal profile

Equity and access, Carers, Fundraising

Posted - in HSPRF News

Supporting HSPers in different ways

Raising awareness of HSP

Posted - in HSPRF News

‘Potato Pants’ is a great way to do it

NDIS update June 2017

Posted - in HSPRF News

Commitment to fully fund the scheme

Social get-togethers in Vic and NSW

Posted - in HSPRF News

HSPers making it happen

US and UK HSP groups’ Newsletters

Posted - in HSPRF News

Read what’s happening in other groups

Social gathering in Brisbane

Posted - February 2017 in HSPRF News

HSPers meet over dinner

HSP Research Program update March 2017

Posted - in HSPRF News

Planning for Clinical Trials

HSPers in Singapore

Posted - in HSPRF News

Mutual support group

NDIS update March 2017

Posted - in HSPRF News

Worrying times for people with disability

Kids with SPG47 HSP

Posted - in HSPRF News

And parents taking on the challenge