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Foundation News

Gene therapy access and affordability

Addressing the challenge globally

Kurt Fearnley appointed NDIA Chair

Disabilty advocate Graeme Innes on the board

NDIS update

Concerns Robo-debt coming to NDIS

Progress on HSP gene therapies

SPG4 and SPG56 research

Community member socials

Held in Victoria, Qld, NSW & ACT

Annual General Meeting

Committee elections

Disability Royal Commission

Heartbreaking evidence heard

Gene therapy development for AP-4 HSPs

Manufacturing collaboration announced

HSP Newslink

Newsletter of the HSP Support Group (UK)

Research program update September 2022

Progress with assays and biomarkers

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HSP Research Foundation

Welcome to the HSP Research Foundation - created in 2005 to find a cure for Hereditary Spastic Paraplegia - an inherited, degenerative disease affecting mainly the legs, causing muscle weakness, spasticity and severely impairing walking. Read more »

Information on this website and resources to which we have links are general knowledge about HSP. We are not medical professionals, nor do we offer medical advice. Always consult your own medical professionals regarding your particular circumstances.

Registered charity

The HSP Research Foundation Incorporated ABN 46648875912 is an Income Tax Exempt Charity endorsed by the ATO as a Deductible Gift Recipient organisation.

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