HSPRF News

HSP clinical trial program update September 2019

Posted - September 2019 in HSPRF News

Progress in preclinical studies and clinical trial preparation

SPF Annual Conference, June 2019, presentations

Posted - in HSPRF News

And research funding allocations SPF (USA)

HSP community socials in NSW & WA

Posted - in HSPRF News

Fundraising in SA & Facebook birthdays

SPF Synapse (USA) and ASL (France)

Posted - in HSPRF News

News from other HSP groups

Gene testing for all seriously ill children

Posted - in HSPRF News

No national strategy on rare diseases

NDIS update September 2019

Posted - in HSPRF News

Parliamentary committee wants your comments

HSP clinical trial program update June 2019

Posted - June 2019 in HSPRF News

Progress in preclinical studies and clinical trial preparation

HSP family takes on wheelchair marathon

Posted - in HSPRF News

Raises $11,500 for HSP research

Ways to raise money for HSP

Posted - in HSPRF News

4 community members’ stories

NDIS update June 2019

Posted - in HSPRF News

Royal Commission; applying & using the NDIS

Overseas HSP community numbers grow

Posted - June 2019 in HSPRF News

106 members, 21 countries, 5 continents

HSPers in the news from Aust., US and the UK

Posted - in HSPRF News

Lawn bowls, community work and wheelchair sports

Social get-together in Brisbane

Posted - in HSPRF News

Same day as biomarker study participation

US Synapse and German TWS newsletters

Posted - in HSPRF News

Learn what is happening in other HSP groups around the world

HSP clinical trial program update March 2019

Posted - February 2019 in HSPRF News

Progress in preclinical studies and clinical trial preparation

Foundation volunteers Isaac, Ryan and Jay

Posted - in HSPRF News

Owed a huge debt of thanks

The Tom Wahlig Foundation celebrates

Posted - in HSPRF News

20 year anniversary, exhibition opening and an award

Social gatherings in Canberra and Brisbane

Posted - in HSPRF News

Connecting with fellow HSPers

Disability abuse Royal commission

Posted - in HSPRF News

Calls from advocates bearing fruit

NDIS Update March 2019

Posted - in HSPRF News

Concerns in NSW