HSPRF News

Research Program update December 2020

Posted - December 2020 in HSPRF News

Clinical trial timeline

SPG4 Clinical trial plans discussed

Posted - December 2020 in HSPRF News

Q&A session at Foundation AGM

International Day of People with Disability

Posted - in HSPRF News

Thursday, 3 December

Royal Commission on Disability

Posted - in HSPRF News

Negative findings in Covid response report

NDIS update December 2020

Posted - in HSPRF News

New assessment process concerns

Disability advocacy funding NSW

Posted - in HSPRF News

$112 million committed over 4 years

US & UK HSP support groups

Posted - in HSPRF News

Latest Newsletters

News from US and UK support groups

Posted - September 2020 in HSPRF News

Annual conferences and newsletters

Research Program update September 2020

Posted - in HSPRF News

Clinical trial in advanced planning stage

Covid’s impact on living with HSP

Posted - in HSPRF News

Trying times for many

Lily Rice now a world champion

Posted - in HSPRF News

Battled back after injury

NDIS update September 2020

Posted - in HSPRF News

Participant Service Charter introduced

Having babies & genetic testing in HSP

Posted - in HSPRF News

Decisions, decisions? Take the survey!

Young Carer Bursary Program

Posted - in HSPRF News

Supporting carers’ education

People with SPG30 HSP wanted

Posted - in HSPRF News

Invitation to participate in research

HSP clinical trial program update June 2020

Posted - May 2020 in HSPRF News

Progress in pre-clinical studies

NDIS update June 2020

Posted - in HSPRF News

More flexibility with using funds

COVID-19 Impact Survey

Posted - in HSPRF News

HSP families invited to participate

COVID-19 journal study

Posted - in HSPRF News

Participation invited

Rural Fire Service volunteer with HSP

Posted - in HSPRF News

Challenges faced with the bushfires