HSPRF News

HSP Research Program update June 2017

Posted - June 2017 in HSPRF News

Focus on pre-clinical investigations

Happy with your neurologist or physio?

Posted - in HSPRF News

Recommend them to the HSP community

Just who is Alan Mackay-Sim?

Posted - in HSPRF News

A personal profile

Equity and access, Carers, Fundraising

Posted - in HSPRF News

Supporting HSPers in different ways

Raising awareness of HSP

Posted - in HSPRF News

‘Potato Pants’ is a great way to do it

NDIS update June 2017

Posted - in HSPRF News

Commitment to fully fund the scheme

Social get-togethers in Vic and NSW

Posted - in HSPRF News

HSPers making it happen

US and UK HSP groups’ Newsletters

Posted - in HSPRF News

Read what’s happening in other groups

Social gathering in Brisbane

Posted - February 2017 in HSPRF News

HSPers meet over dinner

HSP Research Program update March 2017

Posted - in HSPRF News

Planning for Clinical Trials

HSPers in Singapore

Posted - in HSPRF News

Mutual support group

NDIS update March 2017

Posted - in HSPRF News

Worrying times for people with disability

Kids with SPG47 HSP

Posted - in HSPRF News

And parents taking on the challenge

US and UK HSP groups’ Newsletters

Posted - in HSPRF News

Read what’s happening in other groups

Robin John Bligh 24.1.1935 – 27.9.2016 R.I.P.

Posted - December 2016 in HSPRF News

Founder and Inaugural President

Prof. Mackay-Sim honoured

Posted - in HSPRF News

Queensland’s Australian of the Year candidate

HSP Research Program update December 2016

Posted - in HSPRF News

Planning for Clinical Trials

Community members in the news

Posted - in HSPRF News

Dedication and inspiration

A dog and a horse

Posted - in HSPRF News

Animals helping HSPers

NDIS update December 2016

Posted - in HSPRF News

Trial phase shows NDIS is working