HSPRF News

Research program update March 2021

Posted - February 2021 in HSPRF News

Get the latest!

Rare Disease Day 28 February

Posted - in HSPRF News

Together we are strong

HSP community survey

Posted - in HSPRF News

What you told us

Major funding for HSP research

Posted - in HSPRF News

Drexel University team recipients

NDIS update March 2021

Posted - in HSPRF News

Independent Assessments the focus

US support group

Posted - in HSPRF News

Latest newsletter

Research Program update December 2020

Posted - December 2020 in HSPRF News

Clinical trial timeline

SPG4 Clinical trial plans discussed

Posted - December 2020 in HSPRF News

Q&A session at Foundation AGM

International Day of People with Disability

Posted - in HSPRF News

Thursday, 3 December

Royal Commission on Disability

Posted - in HSPRF News

Negative findings in Covid response report

NDIS update December 2020

Posted - in HSPRF News

New assessment process concerns

Disability advocacy funding NSW

Posted - in HSPRF News

$112 million committed over 4 years

US & UK HSP support groups

Posted - in HSPRF News

Latest Newsletters

News from US and UK support groups

Posted - September 2020 in HSPRF News

Annual conferences and newsletters

Research Program update September 2020

Posted - in HSPRF News

Clinical trial in advanced planning stage

Covid’s impact on living with HSP

Posted - in HSPRF News

Trying times for many

Lily Rice now a world champion

Posted - in HSPRF News

Battled back after injury

NDIS update September 2020

Posted - in HSPRF News

Participant Service Charter introduced

Having babies & genetic testing in HSP

Posted - in HSPRF News

Decisions, decisions? Take the survey!