HSPRF News
SPF Annual Conference, June 2019, presentations
Posted - September 2019 in HSPRF News
And research funding allocations SPF (USA)
Gene testing for all seriously ill children
Posted - in HSPRF News
No national strategy on rare diseases
HSP clinical trial program update June 2019
Posted - June 2019 in HSPRF News
Progress in preclinical studies and clinical trial preparation
Overseas HSP community numbers grow
Posted - June 2019 in HSPRF News
106 members, 21 countries, 5 continents
HSPers in the news from Aust., US and the UK
Posted - in HSPRF News
Lawn bowls, community work and wheelchair sports
US Synapse and German TWS newsletters
Posted - in HSPRF News
Learn what is happening in other HSP groups around the world
HSP clinical trial program update March 2019
Posted - February 2019 in HSPRF News
Progress in preclinical studies and clinical trial preparation
The Tom Wahlig Foundation celebrates
Posted - in HSPRF News
20 year anniversary, exhibition opening and an award
Disabled access to hydrotherapy pool reduced
Posted - in HSPRF News
HSPer voices dissent over Council decision
