HSPRF News

Synapse (USA) and HSP Newslink (UK)

Posted - February 2020 in HSPRF News

News from other HSP groups

HSP research program update December 2019

Posted - December 2019 in HSPRF News

Progress in preclinical studies

Social events in the HSP community

Posted - in HSPRF News

5 get-togethers in 4 States

HSPers aiming high in sports

Posted - in HSPRF News

Paralympics dream and a world champion

NDIS update December 2019

Posted - in HSPRF News

Government announces plan to improve the NDIS

International Meeting on HSP and Ataxia

Posted - in HSPRF News

Leading researchers presenting

Synapse (USA) and HSP Group Newslink (UK)

Posted - in HSPRF News

News from other HSP groups

HSP clinical trial program update September 2019

Posted - September 2019 in HSPRF News

Progress in preclinical studies and clinical trial preparation

SPF Annual Conference, June 2019, presentations

Posted - in HSPRF News

And research funding allocations SPF (USA)

HSP community socials in NSW & WA

Posted - in HSPRF News

Fundraising in SA & Facebook birthdays

SPF Synapse (USA)

Posted - in HSPRF News

Newsletter of the USA group

Gene testing for all seriously ill children

Posted - in HSPRF News

No national strategy on rare diseases

NDIS update September 2019

Posted - in HSPRF News

Parliamentary committee wants your comments

HSP clinical trial program update June 2019

Posted - June 2019 in HSPRF News

Progress in preclinical studies and clinical trial preparation

HSP family takes on wheelchair marathon

Posted - in HSPRF News

Raises $11,500 for HSP research

Ways to raise money for HSP

Posted - in HSPRF News

4 community members’ stories

NDIS update June 2019

Posted - in HSPRF News

Royal Commission; applying & using the NDIS

Overseas HSP community numbers grow

Posted - June 2019 in HSPRF News

106 members, 21 countries, 5 continents

HSPers in the news from Aust., US and the UK

Posted - in HSPRF News

Lawn bowls, community work and wheelchair sports

Social get-together in Brisbane

Posted - in HSPRF News

Same day as biomarker study participation