Latest newsletter
Foundation News
Vale Alan Mackay-Sim
Outstanding scientist & dear friend of the HSP community
Rare Disease Day, 28 February
Celebrate Rare Disease Day to raise public awareness
Adelaide Open Garden event, 11 – 13 March
Fundraiser for HSP research
Recent Social Events
Adelaide, Hobart, Melbourne
SP Foundation (US) research funding awards
Over $1 million goes to 7 projects
Gene therapy access and affordability
Addressing the challenge globally
Kurt Fearnley appointed NDIA Chair
Disabilty advocate Graeme Innes on the board
NDIS update
Concerns Robo-debt coming to NDIS
Progress on HSP gene therapies
SPG4 and SPG56 research