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Foundation News

HSP group in the US

Latest newsletter

Vale Alan Mackay-Sim

Outstanding scientist & dear friend of the HSP community

Rare Disease Day, 28 February

Celebrate Rare Disease Day to raise public awareness

Adelaide Open Garden event, 11 – 13 March

Fundraiser for HSP research

Recent Social Events

Adelaide, Hobart, Melbourne

SP Foundation (US) research funding awards

Over $1 million goes to 7 projects

Gene therapy access and affordability

Addressing the challenge globally

Kurt Fearnley appointed NDIA Chair

Disabilty advocate Graeme Innes on the board

NDIS update

Concerns Robo-debt coming to NDIS

Progress on HSP gene therapies

SPG4 and SPG56 research

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HSP Research Foundation

Welcome to the HSP Research Foundation - created in 2005 to find a cure for Hereditary Spastic Paraplegia - an inherited, degenerative disease affecting mainly the legs, causing muscle weakness, spasticity and severely impairing walking. Read more »

Information on this website and resources to which we have links are general knowledge about HSP. We are not medical professionals, nor do we offer medical advice. Always consult your own medical professionals regarding your particular circumstances.

Registered charity

The HSP Research Foundation Incorporated ABN 46648875912 is an Income Tax Exempt Charity endorsed by the ATO as a Deductible Gift Recipient organisation.

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