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Hi, my name is Leanne and my nine year old daughter Aleacia has complicated SPG3A HSP.   Aleacia is the youngest of my 5 children and when she was about 6 months old I noticed she wasn’t meeting her milestones. As she grew she could never sit unsupported, pull herself to stand or crawl other than… Continue reading Aleacia

Community members Mark and Dayna – father and daughter   Mark I grew up in Ferntree Gully in Victoria and am one of 6 children. Growing up I used to get told by my dad to “stop walking on your toes”. I was born with a gait issue (the only one of the kids to… Continue reading Mark

My name is Roger Simpson and I am 41 years old and live in the suburb of Mount Eliza, Victoria which is on the Mornington Peninsula. I am married to Simone and have three kids, Larni (7), Ryan (5) and Paige (3). Both myself and Ryan have HSP which I was passed from my father.… Continue reading Roger

My name is Roger Simpson and I am 41 years old and live in the suburb of Mount Eliza, Victoria which is on the Mornington Peninsula. I am married to Simone and have three kids, Larni (7), Ryan (5) and Paige (3). Both myself and Ryan have HSP which I was passed from my father.… Continue reading Roger

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