Yikes, what just happened!
The fundraising gauge on the website homepage tells a sad and sorry tale of fundraising in 2017. Just $56,000 was raised over the course of the year… Less then 50% of the target of $120,000! Firstly, we are sincerely thankful and grateful to those who contributed to the $56,000 total, but this article is not about those who gave, but rather… those who didn’t. Help us understand what is going on – we need your feedback!
In 2016, almost $140,000 was raised, well over target, but the wind has gone totally out of the sails over the last 12 months.
With over $300,000 committed to preclinical trial investigations this year, and income that is $240,000 short of that, this leaves a big hole in the budget.
We are not sophisticated with our fundraising, unlike the larger, professional charities who have slick marketing and communications platforms to reach their audiences and ‘sell’ their charities to the general public. Is this the problem? Are our email communications on fundraising missing the mark? Would you rather have a text message to your mobile phone to encourage and prompt you to donate?
It might be that community members have run out of steam, or money, or belief in the HSP research program? If you used to give, but don’t anymore, let us know why.
We realise, appreciate and understand that many in the HSP community do it tough and don’t have more than living expenses coming in. Having HSP makes it hard to work and has cut short many careers. It is not unusual for a family member to limit their career or moved to part-time work so that they can care for one or more HSPers in the family. This puts on further financial pressure. But we also know that there are lots of community members who are in a position to give and are not doing so.
We have not cracked the code on how to expand the circle of donors beyond the HSP community to the general public. The nearest we can get to that is for you, members of the HSP community, to reach out to extended family, friends, work colleagues and organisations, clubs and individuals in your local communities to seek support. However, it is clear from the results, that overall, not much of that is going on.
Any feedback or suggestions that you can provide on how we can do this better and be more successful in our fundraising would be much appreciated. Email us!