Progress in clinical trial planning and preclinical studies
Foundation News
Results of June fundraising campaign
And looking ahead
Applying for the NDIS
What HSPers should know
US, UK and German HSP Groups
What other groups are doing
Two fitness enthusiast brothers with HSP
Their story of coping, adaptation and support
HSP clinical trial program update June 2018
Progress in preclinical studies
Gallery for artists with rare disease
Online art contest now open!
NDIS update June 2018
Widespread concerns are mounting up
Disability in the Arts
Kate Hood gives keynote address at international conference
Izzy Wheels
Stylish covers for wheelchair wheels