Patience, ambition and pragmatism
Living with HSP – Management & Treatment News
Learning more about your genetic type
New data sharing tool VariantMatcher
Non-motor symptoms in SPG4 HSP
Potential response to treatment
Mixed urinary incontinence in women
Dramatic improvement in symptoms with surgery
Intrathecal baclofen study very positive
Significant long-term improvements in spasticity
New mobility device invented
Designed to replace both walker and wheelchair
2019 HSP Survey
Focus on medication, exercise
HSPer regaining lost mobility
Intensive neurological physiotherapy helps
Empowering children in HSP families
Choice about gene tests
More challenge needed in daily life
Using skills and social interaction are key to well-being