Skip to content
HSP Logo Hereditary Spastic Paraplegia - Taking steps to towards a cure
  • Home
  • The Foundation
    • Foundation Committee 2024/25
    • Annual Reports
  • About HSP
    • What is HSP?
    • Understanding HSP Mechanisms
    • Research Background
    • Living with HSP – Management & Treatment
  • Genes & HSP
    • Genetic Testing Services
    • Gene Testing Q & A
    • Gene Therapy Basics
  • HSP Research
  • Resources
    • Living with HSP webinars
    • Applying for the NDIS
    • Community Recommended Practitioner Listings
    • Recommend your health professional here
  • Get Involved
    • Join the HSP community
  • Contact Us
  • Current Appeal
    • Past Appeals
  • Give
    • Giving
    • Leave a Bequest
    • Fundraising
  • Search

Living with HSP – Management & Treatment News

Facing adversity due to disability

Patience, ambition and pragmatism

Learning more about your genetic type

New data sharing tool VariantMatcher

Non-motor symptoms in SPG4 HSP

Potential response to treatment

Mixed urinary incontinence in women

Dramatic improvement in symptoms with surgery

Intrathecal baclofen study very positive

Significant long-term improvements in spasticity

New mobility device invented

Designed to replace both walker and wheelchair

2019 HSP Survey

Focus on medication, exercise

HSPer regaining lost mobility

Intensive neurological physiotherapy helps

Empowering children in HSP families

Choice about gene tests

More challenge needed in daily life

Using skills and social interaction are key to well-being

Posts pagination

Newer posts Page 1 … Page 11 … Page 36 Older posts

HSP Research Foundation

Welcome to the HSP Research Foundation - created in 2005 to find a cure for Hereditary Spastic Paraplegia - an inherited, degenerative disease affecting mainly the legs, causing muscle weakness, spasticity and severely impairing walking. Read more »

Information on this website and resources to which we have links are general knowledge about HSP. We are not medical professionals, nor do we offer medical advice. Always consult your own medical professionals regarding your particular circumstances.

Registered charity

The HSP Research Foundation Incorporated ABN 46648875912 is an Income Tax Exempt Charity endorsed by the ATO as a Deductible Gift Recipient organisation.

© Copyright 2006 - 2021 HSP Research Foundation | Privacy Policy