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Living with HSP – Management & Treatment News

Voice problem found in case of SPG7 HSP

Effective treatment available

Genetics company promotes rare disease registries

Connecting with research, clinical trials management

“You’ve got HSP …”

“There is nothing that can be done”

Mobile phone app for wheelchair users

Help with travel planning and getting around

Bike Skills Program for HSP kids

Monash Children’s Hospital, Victoria

Being cold makes walking with HSP difficult

But does warming the legs help?

Improving balance … what works better?

Real-world tasks or Virtual Reality games?

Bone density lower in HSPers

Testing and treatment recommended

SPG7 HSP more common in Australia

Genetic testing providing insight

Are you planned for an emergency?

Be your own ‘first responder’

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HSP Research Foundation

Welcome to the HSP Research Foundation - created in 2005 to find a cure for Hereditary Spastic Paraplegia - an inherited, degenerative disease affecting mainly the legs, causing muscle weakness, spasticity and severely impairing walking. Read more »

Information on this website and resources to which we have links are general knowledge about HSP. We are not medical professionals, nor do we offer medical advice. Always consult your own medical professionals regarding your particular circumstances.

Registered charity

The HSP Research Foundation Incorporated ABN 46648875912 is an Income Tax Exempt Charity endorsed by the ATO as a Deductible Gift Recipient organisation.

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