Encourages others to try it
Living with HSP – Management & Treatment News
Survival tips for caregivers
Ask for help, take time for yourself
Daily duration stretching pays off
Improved mobility and range of motion
Lack of movement has negative impacts
Brain and nerves affected
Botox effects on kids and adults with HSP
The findings of two studies
Is muscle growth impaired in HSP kids?
Earliest age of onset are most affected
Living with a rare disease
New thinking, new ideas
Comparing intrathecal vs oral baclofen
Evaluating intrathecal delivery system
‘Living with the Enemy’
Coping with the stress of a chronic condition
New genotype – phenotype correlations found in paediatric HSP
Warning on imitations of current methodologies