Living with HSP – Management & Treatment News

WE MOVE Spasticity Survey

Posted - May 2009 in Living with HSP - Management & Treatment News

 Invitation to Participate WE MOVE is a not-for-profit organization that utilizes creativity, innovation, and collaborative approaches to improve awareness, diagnosis, and management of movement disorders among people living with these conditions and the professionals who care for them. To better understand the management of spasticity, WE MOVE is   Participation in this survey is voluntary, confidential… Read More »

Whirlwind Wheelchair

Posted - in Living with HSP - Management & Treatment News

Breakthrough in design and function

Cursed by her genes

Posted - in Living with HSP - Management & Treatment News

Krystal changes her destiny

Marina’s story

Posted - December 2008 in Living with HSP - Management & Treatment News

13yr old girl with HSP

Wheelies tow air freighter

Posted - September 2008 in Living with HSP - Management & Treatment News

A team of wheel-chaired folks in the UK

Metabolic cause of some spastic paraplegia

Posted - May 2008 in Living with HSP - Management & Treatment News

Another compelling reason for gene testing

Genetic Testing – some new considerations

Posted - in Living with HSP - Management & Treatment News

Differences between HSPs and other diseases not clear-cut

Botox not just for wrinkles

Posted - in Living with HSP - Management & Treatment News

Spasticity reduced in German HSPers

Find a Physio

Posted - December 2007 in Living with HSP - Management & Treatment News

Exercise programs help

Gene Testing- Questions and Answers

Posted - November 2007 in Living with HSP - Management & Treatment News

Answers to some often asked questions about genes and mutations

HSP & other rare diseases

Posted - June 2007 in Living with HSP - Management & Treatment News

HSP is just one of 6,000 known

Rating Scale devised for HSP

Posted - March 2007 in Living with HSP - Management & Treatment News

The Spastic Paraplegia Rating Scale – a reliable and valid measure of disease severity

Treating Restless Legs Syndrome – web seminar

Posted - in Living with HSP - Management & Treatment News

WeMove.org hosts a web-based seminar on treating RLS

HSPers more susceptible to Restless Legs Syndrome

Posted - in Living with HSP - Management & Treatment News

German study finds evidence HSPers are more susceptible to RLS