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Living with HSP – Management & Treatment News

Intrathecal baclofen for HSP

New study confirms potential benefits

Rare disease drugs and cost

The attempt to make them cheaper

Exercise ball exercises for HSP

From a physio who has HSP

Travel, exotic places, holidays!

But just how to do that with HSP?

Orthoses for HSP

From an expert in the field

Revolutionary new wheelchair

Operated hands-free by body movement

Better genetic testing improves diagnosis

And testing is getting cheaper

HSPers much less energy-efficient when walking

Fatigue related to severity

Genetic testing’s rapid advancement

What is available for HSP in Australia

Medical marijuana studies reviewed

May help with chronic pain and spasticity

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HSP Research Foundation

Welcome to the HSP Research Foundation - created in 2005 to find a cure for Hereditary Spastic Paraplegia - an inherited, degenerative disease affecting mainly the legs, causing muscle weakness, spasticity and severely impairing walking. Read more »

Information on this website and resources to which we have links are general knowledge about HSP. We are not medical professionals, nor do we offer medical advice. Always consult your own medical professionals regarding your particular circumstances.

Registered charity

The HSP Research Foundation Incorporated ABN 46648875912 is an Income Tax Exempt Charity endorsed by the ATO as a Deductible Gift Recipient organisation.

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