Its meaning and importance
Foundation News
Fundraising record in 2012
Total of $115,382 raised
National Disability Insurance Scheme update
NSW announces full rollout
International Rare Diseases Research Consortium
Focused on finding therapies
International Rare Disease Day 28 February
‘Rare Disorders without Borders’
HSP support group in Spain
Foundation committee member visits
Community growth, fundraising and research
How they are connected
Community members in focus
Doing good and raising public awareness
National Disability Insurance Scheme update
Legislation introduced
Dance for Parkinson’s
An inspiring initiative
