Living with HSP – Management & Treatment News
Genetic Alliance wants your thoughts
Posted - May 2016 in Living with HSP - Management & Treatment News
Survey on gene testing
Fatigue, pain, depression and HSP
Posted - February 2016 in Living with HSP - Management & Treatment News
Research study establishes the link
Alleviating spasticity important for mobility
Posted - in Living with HSP - Management & Treatment News
Exercises from a physio who has HSP
TEK mobility device
Posted - in Living with HSP - Management & Treatment News
An HSPer shares his story of using it
New exoskeleton device to aid walking
Posted - in Living with HSP - Management & Treatment News
Lighter and cheaper than earlier models
Intrathecal baclofen for HSP
Posted - in Living with HSP - Management & Treatment News
New study confirms potential benefits
Rare disease drugs and cost
Posted - in Living with HSP - Management & Treatment News
The attempt to make them cheaper
Exercise ball exercises for HSP
Posted - December 2015 in Living with HSP - Management & Treatment News
From a physio who has HSP
Travel, exotic places, holidays!
Posted - in Living with HSP - Management & Treatment News
But just how to do that with HSP?
Orthoses for HSP
Posted - in Living with HSP - Management & Treatment News
From an expert in the field
Revolutionary new wheelchair
Posted - in Living with HSP - Management & Treatment News
Operated hands-free by body movement
Better genetic testing improves diagnosis
Posted - in Living with HSP - Management & Treatment News
And testing is getting cheaper
HSPers much less energy-efficient when walking
Posted - in Living with HSP - Management & Treatment News
Fatigue related to severity
Genetic testing’s rapid advancement
Posted - September 2015 in Living with HSP - Management & Treatment News
What is available for HSP in Australia
Medical marijuana studies reviewed
Posted - in Living with HSP - Management & Treatment News
May help with chronic pain and spasticity
Exercise for HSP
Posted - in Living with HSP - Management & Treatment News
From a physio who has HSP
Beach Wheelchairs
Posted - in Living with HSP - Management & Treatment News
Available right around Australia
GeneStoryTeller – a mobile app
Posted - in Living with HSP - Management & Treatment News
Information retrieval of human genes
Baclofen pump ordered withdrawn – UPDATED!
Posted - June 2015 in Living with HSP - Management & Treatment News
Medtronic ordered to stop selling it
Parental Support Needs Survey
Posted - in Living with HSP - Management & Treatment News
Invitation to participate
