Foundation News

Sydney Workshop 2009

HSPRF Workshop, Sydney, 25 October 2009 37 members of the HSP community attended the Sunday morning Workshop followed by a casual get-together over lunch. HSPRF Vice President and Workshop Convener, Con Xiros said he was pleased with the energy and enthusiasm shown by participants with lots of interaction, engagement and questions being asked. Con also expressed… Continue reading Sydney Workshop 2009

City 2 Surf run in Sydney

Charles wrote (pre-race): Stairs are now getting quite difficult. Getting off the bus is hard going and I have to pause and wait before commencing to walk after getting off. My legs are very stiff.I can still do limited slow jogging and so I’ll be running in the City 2 Surf this weekend. (sponsoring the… Continue reading City 2 Surf run in Sydney

Changes to HSPRF Committee

Changing Roles Robin Bligh, co-founder and in inaugural president of the HSPRF announced in October that he was stepping down. We all owe a huge debt of gratitude to Robin as our achievements as a Foundation are a direct reflection of his leadership and foresight. The fact that the Foundation played a major role in… Continue reading Changes to HSPRF Committee

Medical Profession awareness of HSP

Volunteers helping   Col Harris (pictured), a member of the Foundation since inception, has never missed an opportunity to help raise awareness of HSP in the community or with the medical profession. On request, he has constantly presented himself as a guinea pig whenever and wherever asked at different hospitals and teaching facilities so that… Continue reading Medical Profession awareness of HSP