Many hoping for a better future
Foundation News
Newsletters from HSP groups UK & France
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Dylan Alcott Australian of the Year 2022
His inspiration yielding results
28 February is Rare Disease Day
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NDIS funding cuts
Tens of thousands affected
Groundbreaking UN Resolution on Rare Diseases
Adopted by all 193 Member States
New Foundation collaboration
Genetic Cures for Kids
US HSP support group
Latest newsletter
Research program update December 2021
Research team members presenting
International Day of People with Disability
Friday, 3 December, 2021