HSPRF News

US Newsletter Synapse

Posted - September 2015 in HSPRF News

Spring 2015 edition

HSP Research update June 2015

Posted - June 2015 in HSPRF News

Progress report from the research team

HSP group leaders meet in Madrid

Posted - in HSPRF News

First-ever international meeting, 1-2 June, 2015

2015 Federal Budget and NDIS Scorecard

Posted - in HSPRF News

Initiatives to address employment participation

HSP donation boxes on shop counters

Posted - in HSPRF News

Country butcher in NSW first

Results of survey of HSPers

Posted - in HSPRF News

Medication and lifestyle data

‘Mass production’ drug testing

Posted - in HSPRF News

Hope for faster, cheaper drug treatments

Early onset HSP in India

Posted - in HSPRF News

Collaboration with Sydney researchers

HSP Research update March 2015

Posted - February 2015 in HSPRF News

Progress report from the research team

HSPer takes on marathon Rottnest swim

Posted - February 2015 in HSPRF News

Raises $8,000 for HSP research

Young Victorian HSPer promising athlete

Posted - in HSPRF News

Sets long jump world record

Rare Disease Day, 28 February 2015

Posted - in HSPRF News

Highlights living with a rare disease

US newsletter Synapse

Posted - in HSPRF News

Social, lifestyle and health news and information

Alan Mackay-Sim receives worldwide recognition

Posted - December 2014 in HSPRF News

Key player in spinal cord repair breakthrough

International HSP news

Posted - in HSPRF News

‘Potato Pants’ – unique HSP fundraising idea

Global collaboration between HSP support groups

Posted - in HSPRF News

The way forward for HSP research

Survey for HSPers

Posted - in HSPRF News

Questions about medication and lifestyle

Join the HSP community

Posted - in HSPRF News

Advantages in becoming a member

Current status of the NDIS

Posted - in HSPRF News

3 different perspectives