HSPRF News

Set up a local HSP social group

Posted - December 2014 in HSPRF News

Helping HSPers get connected

Annual General Meeting held online

Posted - in HSPRF News

Opportunity to participate welcomed

National Disability Insurance Scheme

Posted - September 2014 in HSPRF News

Latest updates from four perspectives

Young HSP volunteer

Posted - in HSPRF News

Wins competition for her work

HSPers fundraising

Posted - in HSPRF News

Report on a special birthday and a great lunch

Fundraising so far in 2014

Posted - in HSPRF News

Two-thirds of the way to our target

Volunteering for clinical trials

Posted - June 2014 in HSPRF News

Lot of interest being expressed

National Disability Insurance Scheme

Posted - in HSPRF News

The scheme is secure… for now!

UK HSPer’s blog and survey

Posted - in HSPRF News

Mobilty, symptoms and mis-diagnosis

Melbourne HSPer doing it tough

Posted - in HSPRF News

Herald Sun article

Advantages of wheelchair or scooter

Posted - in HSPRF News

A different view of things

‘Towards a Cure for HSP’ research program update

Posted - February 2014 in HSPRF News

Promising progress… and a long way to go

Rare Disease Day, 28 February 2014

Posted - in HSPRF News

Day of global support for rare diseases

National Disability Insurance Scheme update

Posted - in HSPRF News

Full Government commitment is essential

Participate more in the HSP community

Posted - in HSPRF News

Submit a Community Member profile

Newsletter of SP Foundation (USA)

Posted - in HSPRF News

Synapse Newsletter & Annual Report

National Disability Insurance Scheme

Posted - November 2013 in HSPRF News

Changes under the new government

Rare Voices Australia

Posted - in HSPRF News

September & November 2013 e-newsletter issues

SP Foundation Annual Conference in the USA

Posted - in HSPRF News

Video presentations available

Giving in December

Posted - in HSPRF News

A long way to reach our goal