HSPRF News

UK Newsletter Feb 2016

Posted - February 2016 in HSPRF News

Events, people, support and fundraising

New US program helps develop treatments

Posted - in HSPRF News

Early testing of drugs for rare diseases

NDIS rollout plans for NSW & Victoria

Posted - December 2015 in HSPRF News

Some States are well behind

Adelaide café gets behind HSP

Posted - in HSPRF News

Eating in Italy raising money for research

The NDIS and HSP

Posted - in HSPRF News

One community member’s experience

GOOGLE Impact Challenge

Posted - in HSPRF News

$1 million in grants available

Survey for HSPers

Posted - in HSPRF News

Questions on home modifications and other topics

SP Foundation (USA) Annual Conference

Posted - in HSPRF News

And latest Synapse Newsletter

HSP research update September 2015

Posted - September 2015 in HSPRF News

Progress report from the research team

Foundation fundraising progress

Posted - in HSPRF News

Toyota and Ritchies IGA add to the total

Hardship for two women with HSP

Posted - in HSPRF News

Both victims of rejection

Launch of Rare Diseases International

Posted - in HSPRF News

A global voice for people with rare diseases

NDIS Update

Posted - in HSPRF News

Mixed news over the last quarter

US Newsletter Synapse

Posted - in HSPRF News

Spring 2015 edition

HSP Research update June 2015

Posted - June 2015 in HSPRF News

Progress report from the research team

HSP group leaders meet in Madrid

Posted - in HSPRF News

First-ever international meeting, 1-2 June, 2015

2015 Federal Budget and NDIS Scorecard

Posted - in HSPRF News

Initiatives to address employment participation

HSP donation boxes on shop counters

Posted - in HSPRF News

Country butcher in NSW first

Results of survey of HSPers

Posted - in HSPRF News

Medication and lifestyle data

‘Mass production’ drug testing

Posted - in HSPRF News

Hope for faster, cheaper drug treatments