HSPRF News

Signing up for clinical trials

Posted - June 2016 in HSPRF News

HSPers keen to participate

HSPers making dreams come true

Posted - in HSPRF News

Two ‘good news’ stories

US and UK HSP groups Newsletters

Posted - in HSPRF News

News, views and information from and America and England

Priority Assistive Products

Posted - February 2016 in HSPRF News

Tell the World Health Organisation what you want

Research Update March 2016

Posted - in HSPRF News

Progress report from the research team

German HSP association wins “Google Impact Challenge”

Posted - in HSPRF News

Thank you message to all who voted in support

NDIS update

Posted - in HSPRF News

Significant progress over the last quarter

UK Newsletter Feb 2016

Posted - in HSPRF News

Events, people, support and fundraising

New US program helps develop treatments

Posted - in HSPRF News

Early testing of drugs for rare diseases

NDIS rollout plans for NSW & Victoria

Posted - December 2015 in HSPRF News

Some States are well behind

Adelaide café gets behind HSP

Posted - in HSPRF News

Eating in Italy raising money for research

The NDIS and HSP

Posted - in HSPRF News

One community member’s experience

GOOGLE Impact Challenge

Posted - in HSPRF News

$1 million in grants available

Survey for HSPers

Posted - in HSPRF News

Questions on home modifications and other topics

SP Foundation (USA) Annual Conference

Posted - in HSPRF News

And latest Synapse Newsletter

HSP research update September 2015

Posted - September 2015 in HSPRF News

Progress report from the research team

Foundation fundraising progress

Posted - in HSPRF News

Toyota and Ritchies IGA add to the total

Hardship for two women with HSP

Posted - in HSPRF News

Both victims of rejection

Launch of Rare Diseases International

Posted - in HSPRF News

A global voice for people with rare diseases

NDIS Update

Posted - in HSPRF News

Mixed news over the last quarter