HSPRF News

Rare Disease Day, 28 February 2015

Posted - February 2015 in HSPRF News

Highlights living with a rare disease

US newsletter Synapse

Posted - in HSPRF News

Social, lifestyle and health news and information

Alan Mackay-Sim receives worldwide recognition

Posted - December 2014 in HSPRF News

Key player in spinal cord repair breakthrough

International HSP news

Posted - in HSPRF News

‘Potato Pants’ – unique HSP fundraising idea

Global collaboration between HSP support groups

Posted - in HSPRF News

The way forward for HSP research

Survey for HSPers

Posted - in HSPRF News

Questions about medication and lifestyle

Join the HSP community

Posted - in HSPRF News

Advantages in becoming a member

Current status of the NDIS

Posted - in HSPRF News

3 different perspectives

Set up a local HSP social group

Posted - December 2014 in HSPRF News

Helping HSPers get connected

Annual General Meeting held online

Posted - in HSPRF News

Opportunity to participate welcomed

National Disability Insurance Scheme

Posted - September 2014 in HSPRF News

Latest updates from four perspectives

Young HSP volunteer

Posted - in HSPRF News

Wins competition for her work

HSPers fundraising

Posted - in HSPRF News

Report on a special birthday and a great lunch

Fundraising so far in 2014

Posted - in HSPRF News

Two-thirds of the way to our target

Volunteering for clinical trials

Posted - June 2014 in HSPRF News

Lot of interest being expressed

National Disability Insurance Scheme

Posted - in HSPRF News

The scheme is secure… for now!

UK HSPer’s blog and survey

Posted - in HSPRF News

Mobilty, symptoms and mis-diagnosis

Melbourne HSPer doing it tough

Posted - in HSPRF News

Herald Sun article

Advantages of wheelchair or scooter

Posted - in HSPRF News

A different view of things

‘Towards a Cure for HSP’ research program update

Posted - February 2014 in HSPRF News

Promising progress… and a long way to go