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Foundation News

Accelerating gene therapies for rare diseases

$76 million over 5 years to be invested

Rescuing drug castoffs

Finding a development path for promising drugs

Some aspects of Foundation support role

Demand steadily grown over time

NDIS update December 2021

Fresh concerns about the scheme

Research program update September 2021

Challenging environment for progress

Fundraising in 2021

On the way to a record year

Developing therapies & preventative strategies

Top priority for people with rare neurological diseases

HSPer works with sick kids

So does her dog!

Talking about disability

2 Models & 4 Golden Rules

Commercial considerations undermining drug development

Rare disease communities most affected

Posts pagination

Newer posts Page 1 … Page 6 … Page 37 Older posts

HSP Research Foundation

Welcome to the HSP Research Foundation - created in 2005 to find a cure for Hereditary Spastic Paraplegia - an inherited, degenerative disease affecting mainly the legs, causing muscle weakness, spasticity and severely impairing walking. Read more »

Information on this website and resources to which we have links are general knowledge about HSP. We are not medical professionals, nor do we offer medical advice. Always consult your own medical professionals regarding your particular circumstances.

Registered charity

The HSP Research Foundation Incorporated ABN 46648875912 is an Income Tax Exempt Charity endorsed by the ATO as a Deductible Gift Recipient organisation.

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