Government announces plan to improve the NDIS
Foundation News
International Meeting on HSP and Ataxia
Leading researchers presenting
Synapse (USA) and HSP Group Newslink (UK)
News from other HSP groups
HSP clinical trial program update September 2019
Progress in preclinical studies and clinical trial preparation
SPF Annual Conference, June 2019, presentations
And research funding allocations SPF (USA)
HSP community socials in NSW & WA
Fundraising in SA & Facebook birthdays
SPF Synapse (USA)
Newsletter of the USA group
Gene testing for all seriously ill children
No national strategy on rare diseases
NDIS update September 2019
Parliamentary committee wants your comments
HSP clinical trial program update June 2019
Progress in preclinical studies and clinical trial preparation