Latest News
Foundation News
Rare Disease Day, 28 February 2015
Highlights living with a rare disease
US newsletter Synapse
Social, lifestyle and health news and information
Alan Mackay-Sim receives worldwide recognition
Key player in spinal cord repair breakthrough
International HSP news
‘Potato Pants’ – unique HSP fundraising idea
Global collaboration between HSP support groups
The way forward for HSP research
Survey for HSPers
Questions about medication and lifestyle
Join the HSP community
Advantages in becoming a member
Current status of the NDIS
3 different perspectives
Set up a local HSP social group
Helping HSPers get connected